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Choroideremia Research Foundation - AFB Directory Profile

General Information

Choroideremia Research Foundation
23 East Brundreth Street
Springfield, MA 01109
(413) 781-2274 (Local)
CRFPresident@aol.com
http://www.choroideremia.org

Brief Description

The Choroideremia Research Foundation, Inc. is an international, non-profit membership organization dedicated to raising funds to find a treatment or cure for Choroideremia, a rare inherited retinal degenerative disease that causes blindness. Its membership is comprised of persons with choroideremia, their families and concerned friends.



Clients served on average per year: Over 100
Number of staff: 17
Staff description: Staff is all voluntary and spread throughout the US and Canada.
Geographic area served: International
Publications: Quarterly newsletter published for members.

Staff

Beth Foss, President, bethfossmn@gmail.com
Ty Herring, Executive Director, ty@choroideremia.org

Services Offered

Services for Adults

  • Information and Referral
    • Provides information about Choroideremia, and educated people affected by the disease.
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