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National Organization for Albinism and Hypopigmentation - AFB Directory Profile

General Information

National Organization for Albinism and Hypopigmentation
PO BOX 959
East Hampstead, NH 03826-0959
(603) 887-2310 (Local)
(603) 887-2310 (Fax)
(800) 473-2310 (Toll-Free)
info@albinism.org
http://www.albinism.org

Brief Description

NOAH is a genetic support group that acts as a conduit for accurate and authoritative information about all aspects of living with albinism. NOAH sponsors conferences, meetings and camps where people with albinism and their families in the U.S. and Canada can find acceptance, support, and fellowship. Information sources provided by NOAH include an extensive website which includes resource library, a quarterly magazine, two parent books and a library of webinars on YouTube.

Hours of operation: 24-hour voice mail.
Number of staff: 1.5 FTE
Staff description: Operated primarily by members on a volunteer basis. NOAH contracts with two part time staff.
Geographic area served: Primarily United States and Canada, but no restrictions.
Publications: Informational bulletins, quarterly magazine, and parent books: Raising a Child with Albinism: A Guide to the Early Years and Raising a Child with Albinism: A Guide to the School Years

Staff

NOAH Administrative Services, General Contact, (603) 887-2310, info@albinism.org
Michael McGowan, Executive Director, mmcgowan@albinism.org

Services Offered

Services for Adults

  • Braille/Electronic/Audio/Large Print Production
    • Informational bulletins and quarterly magazines.
  • Counseling
    • Offers self-help groups.
  • Information and Referral
    • Offers programs to enhance public awareness.

Services for Children

  • Community Outreach Programs
    • Holds a biannual family summer camp for children with albinism and their families. Holds a biannual national conference for the albinism community.
  • Information and Referral
    • NOAH provides information and support for its members by:
      • Sponsoring workshops and conferences on albinism
      • Publishing a quarterly magazine, Albinism InSight
      • Publishing information bulletins on topics specific to living with albinism
      • Providing a network of local chapters and contact people
      • Providing a web site that has information about albinism and bulletin boards where people can share experiences
      • Spreading knowledge about albinism and working to improve attitudes towards those with the condition through television appearances, newspaper articles, information packets for libraries, and outreach to professionals
      • Networking with support groups for people with albinism in other countries, and promoting development of albinism support groups throughout the world through participation in the Albinism World Alliance.
    • Summer/Day Camps and After-school Programs
      • The NOAH's Family Summer Camp is offered biannually in the summer of odd numbered years.
    • Support Groups
      • NOAH works to facilitate connections among individuals in the albinism community. Call or e-mail for more information.
    National Organization for Albinism and Hypopigmentation, is this page missing one of your services, events, programs, or announcements? Update your information for free.

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