Any one with PANUVITIS
Posted by pat g on 5/7/2007 at 12:06 PM
I would like to get imput from any one that might have what I have........
There are currently 7 replies
Re: Any one with PANUVITISPosted by TheBlind.US on 9/15/2012 at 12:33 PM
Just Choroideremia here.
Re:Any one with PANUVITISPosted by mafora on 7/28/2010 at 10:46 AM
I am also diagnosed with Panuvitis.
vision lost due to panuvitisPosted by majaharansari on 3/9/2010 at 7:55 AM
im a nepali student ant one of my frind iz totaly blind due to panuvitis since5days.and we are scared due to this matter.he is of 25years male and now he iz totally blind,so if any suggestion,would be thank ful.the doctors are still trying ther label best but no result.now he is totaly blind and hopless.waiting for a good response as soon as posible..
Re:Any one with PANUVITISPosted by godmami on 10/4/2007 at 12:37 PM
My name is katie , i am 25 years old and i have 3 young children . I was diagnosed with panuvitis on tuesday october 2nd .The doctor didnt explain it too much but i am very scared , can someone please explain it better for me ? --scared in buffalo ny
Re:Any one with PANUVITISPosted by minime0918 on 8/14/2007 at 4:53 AM
I am 40 now and was diagnosed with the big P when I was 9 years old. My doctors at the time said that a young person getting this was very very rare and they never actually were able to tell me how I got it. I still have some vision in my left eye but lost all my vision in my right eye. Due to a lot of doctors telling me that Pretnizone was the best way to treat the Panuvitis. At the time maybe it was but I paid the price with detached retna later on that was caused by medication. I actually went to school got my Masters degree and doa lot of work for people living with vision loss. I have a lot of great resources if anyone needs to know anything about living with low vision just email me firstname.lastname@example.org
Re:Any one with PANUVITISPosted by pat g on 5/8/2007 at 4:35 PM
I really messed up the spelling...I know it is scary. I have a really good Doc. He has sent me to different areas for suggestions. There are treatments that can slow the progression down. Some of the treatments sound worse than they really are, actually they all sound worse than they are. I have been coping with this for about 7 years. Have you lost any of your vision? I am so glad to hear from you. I am 34 years old. A stay at home mom. I have came to realization that I can achieve more than I give myself credit for.
Re:Any one with PANUVITISPosted by h-bomb74 on 5/7/2007 at 5:33 PM
I was diagnosed with Pan Uveitis this morning. I am currently waiting on the blood lab results in an attempt to find out what caused it. I am a Sergeant First Class, Scout Platoon Sergeant in the Army. I have been looking at articles on this all afternoon. None of them are good news. I'm dredding my next appointment with the opthamologist.
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