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AFBAmerican Foundation®
for the Blind

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help im going blind and im scared

Hi my name is amanda and last november i went blind in my left eye and at first they diagnoised me with optic neuritisis but now they dont know what it is so i feel your concern im only 15 and i am so scared


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Re: help im going blind and im scared



To Rufus

You are right about the macho thing. We in law enforcement are taught to believe that we are superhuman, can do almost anything. And then something
happens to us.

Disability is not easy (Social security); getting it is no easy task. Doctors have to really be good and care for
you in order for them to even consider writing a letter for you. No easy task when my health insurance is an HMO based one.

Medically speaking I am of the believe that one
serious illness can compromise you overall health if left untreated. My going blind can be traced/caused by a lot
of things.

Yes, this is the most scariest I have ever faced.
All the testing I done to be a LEO doesn't even compare anymore.


Re: help im going blind and im scared



JWong,
I was an officer with the local sheriffs deptment for 11 years before losing my job due to post lasik ectasia. I have some residual vision but am slowly going blind. It took two years to get the paperwork for my pension and social security straightened out,

In those 2 years I went deeply into debt while my cases stagnated in court. At the time the financial stress was far worse than that of going blind I was more concerned with losing my house than losing my vision!
It was hard to face being forty and having few professional skills that didn't consist of carrying a gun or dealing with criminals, I was lost depressed and more scared than I'd ever been while on the job.

Two years into the process I won't say everything is peachy. I have plenty of bad days. I miss my old life my old identity my old eyesight. I get mad at life, fate and god. But the good days are starting to pick up in number.
As far as advice on what to do? It's easy said and hard to do. Seek help! While on the job remember the reassurance of knowing other officers had your back and were just a radio call away? Once I got over my macho ( I can do this by myself) attitude, life began to get easier. I swallowed my pride and called for backup!

I sought help from community organizations for the blind, I got training in mobility and technology and even found a mentor of sorts who'd been through a similar situation. Admitting I needed help was far harder than anything I had ever done before, but it was worth it. I'm not where I want to be ( and might never be) but I'm not going to let this beat me. I will continue to do everything in my power to be a productive positive person once again.
Going blind sucks and that's a fact. All I know is that the time spent feeling sorry for myself was not productive, while the time I spent learning and getting prepared with new skills made me feel better!
I urge you to reach out to others and give yourself a fighting chance at happiness.
Sincerely
Ruckus


Re: help im going blind and im scared



Talk about being terrified. I am a policeman and I am slowly losing my vision. Nobody has the answers to the cause, the best things my doctors tell me are it is not
their department.

What would you do if you were blind and going poor?

I have often thought about ending it all.

Any tips would be appreciated.


Re: help im going blind and im scared



Dear Amanda: It is scary! I'm SCARED! There is no way around it. I was diagnose with ARMD almost 10 years ago at age 48. Shortly thereafter my X left me. Any great tragedy involves the 7 stages of grief. Grief refers to a loss. My vision loss has been gradual but very real; it will only get worse. I've lived in denial since I was diagnosed but denial is becoming harder. I've yelled at God, felt helpless, asked, "Why me?", felt that I must have done something bad, feel guilty for going blind and needing help, been so damn depressed and cried and cried some more. It's a difficult disability. People look at us and don't know how the world looks on the other side of our eyes. I am very strong, independent, capable, self-sufficient and...I hide it well. No one wants to be labeled disabled or need to admit to needing help. The hardest battle I face is that I don't know how to go blind or where to turn. I ask my voc rehab counselor where to go for help or what services might be available and all he can say is, "Go on the internet." "Thanks..." Ask and you shall receive. Begin asking for help. Find one place to ask and if they can't give you answers don't stop asking! "Thank you for your help do you know anyplace else I might be able to turn to get answers?" You might have to make 100 calls but, eventually, you will find someone who will give you the right answers to maneuver the maze of going blind. It is alright to be scared. It is alright to ask for help. I grasp that you are young but you will fight many demons in your lifetime. You can fight this one, also!


Re:help im going blind and im scared



Im 14,i go to east middle school,at 1st grade i was terribly near AND far sighted,but at 4th, i became blind in my right eye,its a scary phase,ik how you feel,and the worst,im also VERY blue eyed,what causees it? the pigment,the color,but it isnt the end of the world,be grateful you get to live :)


Re:help im going blind and im scared



I know what you mean. I'm 16 years old and have De Morsier Syndrome. I am at a VERY high risk for retianal detachment at any time at my life. I know how it is to live in fear. Yes, there are days when I am terrified about it and other days I have a peace that its going to be okay. Just remember, blindness isn't the end of the world. You can go on and live. i know that it sounds scary but there is help. Go to a rehab centre or talk to someone you trust. Feel free to e-mail me at so we can talk.
~Franandiah


Re:help im going blind and im scared



just recently found out my wife is going blind. scared here too


Re:help im going blind and im scared



The first two replies really have it write. You may hope for the best but you need to be prepared for the worst. Get your help now. Learn to cope, this is not the end of anything unless you let it be the end.

Annie


Re:help im going blind and im scared



Hello I'm name is Sean and hope what I'm about to type helps out:

1st. Calm yourself and lo at the scense your in, don't think the world is ending because of vision lost.

2. Learn to low vision aids or blindness aids.

3. Learn to use the White Cane,

and finally it is respectable to be blind.

If you want a bit more info: email me

linkstarwind@cox.net


Re:help im going blind and im scared



hey My name is carol.I know how you feel scared going blind. I have rp so I am loseing my eyesight for now tunnel viison.I was afaid to lose my I sight buy went to a rehab place to get help and ready when I lose eyesight. You ever though to a rehab to get some confdient in life. things will turn out fine take one day at a time. carol and sly in ca


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