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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

All blind people aren't old

My 30 yr old daughter lost her sight over a 10 month period 4 years ago. It has been very difficult to find support for someone that age and figuring out what is out there. Both of us are extremely frustrated. Please don't sugges Mass Commision for Blind, they're useless.

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Re: All blind people aren't old



Hi SPCorey,
I'm sorrhy for the struggle you and your daughter are having. I know this all too well! This past June I moved from Massachusetts because there was absolutely nothing for me in terms of supportive housing for the blind. You're absolutely right, the comission for the blind is totally useless! Have you looked into the carroll center in Newton? They do have some ok services, independent living training, ETC.
I don't know your daughter's situation, if she's looking to live away from home or not. This was my challenge as a 24 year old totally blind girl needing to be away from my family, but due to various issues, I do not fit the mold of wanting to live totally by myself.
One organization that was receptive to helping me is Advocates. They have a variety of services for those with different disabilitys. I believe they're based in Framingham. One of the services they provide is shared living, where someone with a disability is matched with a care provider or companion. The two people I worked with for a short time who do this rocess were very comitted to finding a good match. The problem for me was that it can take up to a year to find a match sometimes, and I didn't want to wait that long.
I moved to Chicago to Friedman Place, one of two supportive living facilitys for the blind in the U.S. All and all I'd say this was a very good decission. Residents have their own very nice apartments to themselves, yet staff are always around if you need something. Meals, laundry service, and housekeeping are provided. There are nurses on staff regularly during the day. To me, it's a place where I fit in and feel safe. I don't have to worry about anything and can focus on other issues.
If you want any more info about any of this please let me know. You can e-mail me at:
samnelson1@verizon.net
I truly wish that every state or at least region had supportive living facilitys like Friedman Place, or shared living programs that didn't just offer services to those with autism or developmental disabilitys. Just like not all blind people are old, not all blind people can or want to live totally independently, and they should have the option of a place that's right for them.
I really hope this information has helped in some way.


Re: All blind people aren't old



I would guess that you probably live in the United States, and live in the state of Massachusetts. Have you checked into
the National Federation of the Blind of Massachusetts or Massachusetts Association for the Blind and Visually Impaired?

http://www.nfbmass.org/

http://www.mabcommunity.org/massachusetts-associat...

You may also want to check into the Hadley School and Lighthouse International.

http://www.hadley.edu/

http://www.lighthouse.org/

i'm not sure exactly what support you are looking for, but if you talk to them, they may be able to help you out.


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