Looking for other Legally blind moms.
Posted by kcflpie on 10/19/2012 at 1:55 PM
Wanting to find other legally blind moms, like myself, to assist with research for what i hope to be a book. I don't drive and have my limitations but most people certainly don't realize that I am visually impaired. I am a good actress with a lot of tricks up my sleeve for being functional, like I am sure many of you are. Would love to chat and hear your stories of struggles, triumphs and fun times as a mom who is visually impaired of whatever nature. We offer a perspective that no other dynamic can and I would like to highlight that rarely or never considered point of view. If nothing else I will enjoy finally getting in touch with other moms like me. Looking forward to your replies.
There are currently 6 replies
Re: Looking for other Legally blind moms.Posted by Kaliejene on 8/9/2014 at 1:20 PM
I'm a 28 year old mom of 3 with optic nerve hyperplasia and septo optic hypoplasia, I'm legally blind in one eye and less than perfect vision in the other. I would LOVE to connect with other mom's who can understand what I go through. It's so hard to find someone who understands. Please email me email@example.com or find me on fb kalie bender
Re: Looking for other Legally blind moms.Posted by InluvwIreland on 2/17/2014 at 1:55 PM
I just came across this and realize how old the other posts are so hopefully we can connect. I have low vision due to a disease affecting my retinas. I am the mom of two children and my sight has gone downhill in the last 3 years. Would love to talk to other moms who have similar issues. My kiddos are middle school age which brings new struggles.
Re: Looking for other Legally blind moms.Posted by Kailaallen22 on 6/10/2013 at 1:10 PM
I am a 30 year old low vision mom I am so glad to have found this post. Most posts I have found are for sighted parents with blind children not blind or low vision parents with sighted children. I would love to join a FB group. I have a few friends that are blind or low vision but non of them have children. My daughter with be starting school in Augest and I am not sure how to handleit. Do I just go up to the bus driver and tell them that I have a hard time seeing. And the same with her teachers? Also how am I going to help her with her home work. I am afraid that the other children will treat her differently because her mom can't see well.
Re: Looking for other Legally blind moms.Posted by Adriane on 2/26/2013 at 7:35 AM
I too have lived pretty incognito, until recently. I'm a 28-year-old legally blind mom of two girls, a 2 and a 4-year-old. I have Septo Optic Hypoplesia. After I graduated high school I discovered I was only as dependent on others as I allowed myself to be. I had LOTS of tricks for hiding my vision problems. Even when my girls where babies I didn't have much trouble. Anything someone with regular vision could do I was determined to do effortlessly too.
This past year has gotten increasingly difficult for me and my "ego" now that my girls (who have no vision problems) are getting older. I panic if I loose sight of them in a crowd, I can't keep track of them at the playground...
So, in November I swallowed my pride and went to the eye doctor for the first time in 15 years, who sent me to a low-vision doctor who referred me to a rehabilitation and mobility center.
It gave me a lot to think about, like using a cane for the safety of my kids even though I'd prefer never to use one. Or admitting to my kids kindergarten teacher that I don't see well so that we can avoid misunderstandings.
I haven't made any decisions yet, what kind of help to accept, but I'm starting to realize I can't be a "normal" mom, and it hurts. I was glad to find this post. I'd love to hear the way other visually challenged moms handled their preschool-age parenting challenges!
Re: Looking for other Legally blind moms.Posted by christina.rice on 1/19/2013 at 2:05 PM
I wanted to say thank you for trying to start a group for blind or visually impaired Mothers. I have been looking for something like this for quite some time but this is the first time that I have found it. I am a young mother of three little boys they are ages 2, 5, and 6. I myself am almost totally blind and I am going to school to earn my AS degree in Human Services. I am married to a wonderful man who is totally sighted, my children are totally sighted, and they know exactly what buttons to push in order to get their way because I am almost totally blind :-) there are not too many people in the area that I live in that are blind or visually impaired so life gets a little overwhelming not having anyone to talk to that has the same disability I do.
Re: Looking for other Legally blind moms.Posted by afarnam on 11/7/2012 at 3:31 PM
I'm sorry to see that there aren't any other replies here. I am thinking of starting an FB group for blind and visually impaired parents because I have seen very specific FB groups do a great deal of good these days. In any event, I'm visually impaired, perhaps similar to you. Until recently, I was legally blind but completely incognito - sometimes not too safely crossing streets but the trade-off seemed worth it. Now, I can't wear contacts any more and have to use glasses, which is a BIG step backwards. Now, I'm using a cane regularly for the first time ever. I am also finding, with two toddlers, that parenting is by far the hardest thing I have ever done from a vision perspective, and that includes working as a newspaper war correspondent in Kosovo. Now, the sheer exhaustion of constantly searching for tiny shoes, mittens, drink bottles, every other small totally necessary and easily movable item in the household is enough to bring me to my knees daily. This evening I put "blind mothers" into a search because I realized that I had found at least one interesting coping skill. I can now read stories to both toddlers, who shriek that they want to look at the pictures all the time while I read the small print. I do this by having both kids lie on a bed near the edge, while I sit on the floor, so that when I hold the book up at 2 inches from my face, they can see the pictures over my shoulders. Just thought I should share that one, because it has taken too long to figure it out. I'm happy to help with research if it is reasonably possible.
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