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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Searching for Support as a mom with a newly blind son

Hello - I'm new here. I've been searching for a forum to find parents who may have gone down this road before. My 8 year old son has lost his sight due to uveitis just in the last year. He's always been such a happy child despite other challenges he has such as hearing impairment and juvenile arthritis. Now he's beginning to lose his spirit. I'm just out of my mind with fear and worry. I'm trying my best to get him excited about all the new things he's learning (braille, cane, etc.) but it's so new to me that I'm struggling. Anyone else have a child that has lost their sight in gradeschool?

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Re: Searching for Support as a mom with a newly blind son



Our son has juvenile retinoschisis. He has been treated by Dr. Khaled Tawansy for the last 5 years. His office is in Eagle Rock, CA(next to Pasadena, CA). His specialty is Pediatric Vitreo-Retinal Surgery, Ocular Trauma, Uveitis. He is tops in his field. Hope this helps.


Re: Searching for Support as a mom with a newly blind son



I'm not sure how much help I can be, but I lost my sight when I was in middle school. I know that as the awesome parent that you sound like you are, you want to do something to make your son feel better, but as a kid that has gone threw a similar situation as your son, the best advise that I can give you is to give it time. It takes a certain amount of time to realize the realitty of a situation with such an impact as this one, but after a while you will begin to see the adorable happy little boy that your son was.I know that I am much older han your son, and probably a bit younger than you, but if you guys ever want someone feel free to contact me.


Re: Searching for Support as a mom with a newly blind son



Hi! That sounds really tough - even adults who lose their site later in life have a difficult time adjusting. I'm sure a child would find it even more difficult!

Have you thought about joining the BVI-Parents Yahoo list? It's a very active group with parents dealing with all sorts of issues - you may find someone there who can give you advice:

http://www.wonderbaby.org/resources/bvi-parents-ya...

Amber


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