Single visually impaired mom wishing to connect with other blind parents
Posted by AshaMama on 8/22/2011 at 4:31 PM
I saw a few posts below about parents sort of in my position, but the posts seem to have gone dead. I'd really like to connect with other blind parents, especially those who are the primary caregiver. When I was pregnant I couldn't find hardly any solid advice, so I started a blog recently. I've been trying to compile information to help others who would like to be less dependent, along with tips, product reviews, so forth. Hope to hear from you.
There are currently 12 replies
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by jade-maria on 7/21/2015 at 5:23 AM
I'm working on behalf of Guide Dogs and Blind Children UK. We are conducting a few online focus groups over this week, with one group starting today. We are wanting to speak with young adults and parents/carers of children with visual impairments. The focus group would last just over an hour of your time. You would be reimbursed for your time with a £20.00 Amazon gift voucher. If it would be of interest to you, please don't hesitate to contact us on 08001522126 or firstname.lastname@example.org.
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by Kailaallen22 on 6/10/2013 at 1:27 PM
I just created a FB Group called Low Vision/Blind Parents please conect with us so we can share.
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by Patsyblue on 3/31/2013 at 5:33 PM
HI What I say may not be of interest as its about a UK based charity. However I can't help but think the challenges we face are pretty much the same wherever you live, the only difference is accessing services. Hope that makes sense!!!
There is a organisation called Disabled Parents Network who operate in England and Wales who have a Facebook page and online forum for parents irrespective of their impairment or condition.
The forum is at: http://www.disabledparentsnetwork.org.uk/cgi-bin/d... and you may find some families with similar experiences in England or Wales. Many families find it a useful resource for information and tips on finding equipment, problem solving and peer support. It provides the opportunity to ask questions, chat and connect with others in similar circumstances, reducing the sense of isolation many feel. We welcome disabled parents, parents-to -be, partners,Grandparents, family members, professionals and media, who can register. Subject to moderator approving registration they will then send a confirmation email and you shouldl then be able to post. I don't think there'd be a problem with joining. By posting there you can ask questions and get answers from others who have 'lived experience'.
We are also on Facebook at: http://www.facebook.com/#!/pages/Disabled-Parents-Network/110710459009048 and so you might like to visit us there too.
They are also on Twitter at DPNUK
Just thought I'd mention it, even if it is in another country.
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by afarnam on 11/7/2012 at 3:49 PM
Hi, I just found this site. I hope this thread isn't all played out. I'm a visually impaired mother of two very active toddlers. While I am significantly legally blind, I blithely assumed I could do anything but drive with no trouble and that parenting would be no harder for me than for anyone else. I have since found out that this is the stiffest challenge to my "I'm not really disabled" attitude yet, and I've done a lot of crazy things. I would definitely like to connect with others in similar situations to exchange ideas and strategies. Anyone interested in a Facebook group on this topic?
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by Evelyn's Mommy on 5/2/2012 at 3:28 AM
Hi I am a 22 yr old single mother of a blind 3 yr old daughter, I just came upon this site and saw that I relate to everyone here:) my daughter was born blind her condition is called ONH or Optic Nerve Hypoplasia, she was diagnosed since she was 6 months of age, she currently started preschool and she is doing great!!:) I would like to chat with anybody who can give me some tips on how to better understand my daughter, you can email me at email@example.com.
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by molekyl on 4/23/2012 at 1:25 PM
I used to know a man in his 40's who grew up with 2 completely blind parents and we asked him what it was like. He said that he didn't know, because to him it was normal. He didn't know how things were "supposed" to be. So please remember this! He had many siblings by the way and a very happy childhood.
Re: Single visually impaired mom wishing to connect with other blind parentsPosted by saskiamom on 3/12/2012 at 1:49 PM
Hi, I'm a 36 year old SAHM to two kids ages 4 and 6, I have RP and about 20% vision left so legally but not completely blind. I'd love to connect and chat as well with others as well.
Re:Single visually impaired mom wishing to connect with other blind parentsPosted by blindmother on 2/11/2012 at 3:55 PM
Hi, I will be a single mother and my baby is due in june. I do not have any family and friends in this country and have no idea of what to expect. I would appreciate any help and advise. Please contact me at firstname.lastname@example.org
Re:Single visually impaired mom wishing to connect with other blind parentsPosted by nikkirae on 2/5/2012 at 5:25 PM
I've already posted to this once but I wanted to leave my e-mail for any one interested in making a connection with a fellow blind parent. Please do not use my e-mail for spam... email@example.com
Re:Single visually impaired mom wishing to connect with other blind parentsPosted by nikkirae on 2/1/2012 at 5:47 AM
Hi, I am a single 28 year old mommy of two and am totally blind. I would love to conect with others in similar situation. You can catch me on here or leave me a comment on my blog http://playingtheblindcard.blogspot.com There you will find funny stories and lists related to blindness. In addition there are inspirational stories about real people and generally just a positive outlook on blindness. Most importantly I would love to get to know other blind people... you can never have too many friends.
Re:Single visually impaired mom wishing to connect with other blind parentsPosted by little wolf on 10/7/2011 at 10:55 PM
Hello there. I am a totally blind mom of four children all under the age of 10. I am always willing to chat with other blind parents either to bennifet from their experiences or to share my own. I check for new responses on this site all the time. I'm always around. Feel free to chat I love to talk.
Re:Single visually impaired mom wishing to connect with other blind parentsPosted by TLegare on 8/31/2011 at 4:27 PM
My name is Tyler. I am 25 yrs old and I am a single father of an 8 month old daughter. I would like to connect with other blind single parents.
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