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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

The National Agenda on Vision and Aging 1998-2005

Report to the Field


Alberta L. Orr, Judy Scott, and Priscilla Rogers

And Members of Six Goal Working Groups


American Foundation for the Blind

11 Penn Plaza

Suite 300

New York, NY 10001

Copyright 2005 AFB. All Rights Reserved

Alberta L. Orr, Priscilla Rogers, and Judy Scott are grateful to all those who helped to shape and implement the Agenda even though their names may not be mentioned.

History of the National Agenda

The exponential growth of the aging population in this country has been a concern of policy makers for the last two decades. This has led to considerable effort in the aging arena on planning how to provide services in new ways and for the decades to come. Growth in the older population will also have an impact on the field of vision rehabilitation: more older people will experience age-related vision loss than can be served. This is due to limited resources, both in funding and personnel. In fact, in the last decade fewer than 2 percent of older persons with vision loss have received services through the Title VII Chapter 2 service delivery program, Independent Living Services for Older Individuals Who Are Blind, which is the only federally funded program of vision rehabilitation services for older persons experiencing vision loss. A major initiative was therefore called for in the vision rehabilitation field to address this overwhelming situation.

In 1997, national aging program staff at the American Foundation for the Blind (AFB) began designing a way to address critical issues facing older people who were visually impaired as well of those confronting professionals working in the field of vision rehabilitation. AFB and leaders in the field of the education of blind students had already created The National Agenda for the Education of Children and Youths with Visual Impairments, Including Those with Multiple Disabilities, which was achieving considerable success. Was a National Agenda on Vision and Aging the next step?

Aging program staff formulated a list of 17 topics. They asked AFB's National Aging and Vision Network if they thought a National Agenda was an appropriate strategy and, if so, to rank order the critical issues. The Network consists of professionals and a small group of consumers interested in service delivery to older people experiencing age-related vision loss. Of the 450 members of the Network, 237, or 53 percent, responded by prioritizing the issues. Six issues clearly emerged as the highest priorities and became the goals of the National Agenda on Vision and Aging (see full descriptions below).

To secure additional input, AFB staff took the prioritized list to two national conferences, where they convened meetings of the National Aging and Vision Network, open to all, to obtain further input. Staff drafted the language for the six priorities and a position statement. Another convening group worked with aging program staff to refine the language. As a result, a seventh critical issue was added to the National Agenda's goals.

In 1998, at the National Aging and Vision Network meeting held at AFB's Josephine L. Taylor Leadership Institute (JLTLI), its national policy conference, participants adopted the National Agenda. Its purpose was to "shape public policies and public attitudes that enable individuals age 55 and older who are blind or visually impaired to participate fully in all aspects of society." The desired outcome of the Agenda is real systemic change to improve the quality and quantity of services to older individuals who are visually impaired.

National Agenda Organization and Participation

One of the cornerstones of the National Agenda has been the ability to mobilize professionals and consumers throughout the country around critical issues. Approximately 140 professionals, three of whom represent consumer organizations, were involved in carrying out the activities of the National Agenda on Vision and Aging. Each goal was carried out by a working group of professionals and, in some cases, a consumer. These individuals represented organizations and agencies throughout the vision rehabilitation field, including 18 national organizations represented on the National Steering Committee. The Steering Committee was responsible for overseeing the Agenda, evaluating its results, and recommending changes. In 2004, two national organizations in the field of aging joined the Steering Committee. The Committee members are listed at the end of this document. AFB Aging Program staff are listed below.

AFB Aging Program Staff

Alberta L. Orr, Program Manager, Vision and Aging, New York, NY

Priscilla Rogers, Ph.D., Consultant, AFB Center on Vision Loss, Mooresburg, TN

Judy Scott, Director, AFB Center on Vision Loss, Dallas, TX

Alan Dinsmore, Senior Governmental Relations Representative, Washington, D.C.

Paul Schroeder, Vice President, Programs and Policy Group, Washington, D.C.

Goal Summaries

The summaries below provide an in-depth view of the membership, purpose, activities, products, impact, and outcomes of the National Agenda goals.


Goal 1 Summary

Goal

Development of a self-advocacy skills training curriculum for inclusion in vision rehabilitation programs serving older persons who are visually impaired.

Purpose

To create a model training curriculum on self-advocacy for use across the country with older persons who are visually impaired.

AFB Staff

Priscilla Rogers, Ph.D.

Alberta L. Orr

Activities

  • Wrote draft of self-advocacy skills training curriculum.

  • Presented draft at the aging work group session at AFB's JLTLI for feedback.

  • Refined curriculum.

  • Piloted curriculum with 29 agencies and consumer groups.

  • Finalized curriculum based on experience and input.

  • Curriculum published by AFB Press in 2002.

  • Conducted 11 train-the-trainer workshops with over 325 participants, including Veterans Administration Visual Impairment Service Team (VIST) coordinators, Chapter 2 program managers, American Council of the Blind's (ACB) Alliance on Aging and Vision, National Federation of the Blind (NFB)'s Senior Blind group, and others.

  • Certification by the Academy for Certification of Vision Rehabilitation and Education Professionals (ACVREP) obtained for rehabilitation teachers and orientation and mobility (O&M) specialists taking the course.

Products

Curriculum: The curriculum is entitled Self-Advocacy Skills Training for Older Individuals Who Are Visually Impaired. The manual includes large-print, disk, and audio formats and is comprised of three separate documents: train-the-trainer manual, participant manual, and family booklet.

Curriculum outline:

  • Adult Learning Strategies
  • Module I: Importance of Self-Advocacy Skills Training
  • Module II: Philosophy of Self-Advocacy
  • Module III: Vision Loss and Psychosocial Adjustment
  • Module IV: Understanding Interpersonal Communication
  • Module V: Taking Ownership of Your Life
  • Module VI: Empowerment and Making Choices
  • Module VII: Rights for Everyday Living and Self-Advocacy Strategies

Outcome/Impact

As a result of the train-the-trainer program, older persons are beginning to have access to the curriculum. Although the goal group devised an evaluation form for agencies to use to determine the impact of the curriculum on older individuals, no feedback has been received to date.

The manual has been adopted by some agencies and incorporated into their independent living programs.


Goal 2 Summary

Goal

Increase public awareness about age-related vision loss and vision-related services.

Purpose

  • Create and distribute public education materials about age-related vision loss and the availability of services to reach seniors who are beginning to experience vision problems and their family members.

  • Increase awareness on the part of the general public about age-related vision loss and the eye conditions associated with aging.

AFB Staff

Judy Scott

Liz Greco Rocks, Former Vice President, Communications Group, New York, NY

Partnerships

Established national partnership with National Eye Institute, National Institutes of Health (NEI), to help design and implement a public education effort. Through our partnership, our educational information is being shared throughout the country.

Activities

  • Determined the target audiences to be older adults who are beginning to experience vision loss, their family members and caregivers, and eye care professionals and their staffs.

  • Promulgated the message to encourage older adults to see their eye care professional and ask about low vision rehabilitation services.

  • Produced a poster and health fair card in English and Spanish to be placed in locations older adults frequent, such as senior centers, nutrition sites, libraries, medical clinics, and health fairs.

  • Promoted poster packets and the NEI booklet "What you should know about low vision!" to Chapter 2 programs, Area Agencies on Aging (AAAs) and other organizations providing programs and services for the aging.

  • Distributed packets in English (28,859) and Spanish (8,566), booklets in English and Spanish (238,566), and health fair cards in English and Spanish (79,852).

  • Created and distributed, with the assistance of the AFB, Spanish language public service announcements (PSAs) to 411 radio stations. The announcements' message was consistent with the Goal 2 message that "Help is Available."

  • Created materials for eye care professionals and their staffs. Members implemented pilot projects in their state or city to determine the best approach. Results of these efforts varied.

  • The partnership with NEI continues by including the poster on low vision in the "See for Yourself Program." NEI will work with Goal 2 and Lighthouse International to revise the poster and adapt it for publication in Spanish. The poster will be included in a new program for seniors with low vision: "See for Yourself: Vision and Older Adults." This program will be distributed to health education, rehabilitation, AAAs, and other organizations providing services to older adults.

  • The members are partnering with the National Association of Area Agencies on Aging (N4A) on the "Making the Link Project." This is designed to reach eye care professionals and their staffs to educate them about vision issues for the caregiver and the availability of resources at both the national and local levels. An education packet is being produced to be delivered by AAA staff to ophthalmologists' offices in the designated locales of their pilot. This is an excellent strategy for getting this important information into the hands of one of the target populations.

Products

PSAs

Packets containing the following:

  • Booklets: "What You Should Know About Low Vision," in English and Spanish
  • Health Fair Cards: "Do You Have Trouble Reading?" in English and Spanish
  • Posters: "Do You Have Trouble Reading?" in English and Spanish

Outcome/Impact

The goal 2 group designed an evaluation instrument to be used with the packets. However, few results have been obtained from the users. The number of packets distributed and the repeated requests for materials from groups and individuals are evidence of the need for such materials.


Goal 3 Summary

Goal

Carry out advocacy efforts to increase federal funding for the Title VII, Chapter 2 Program of the Rehabilitation Act (Independent Living Services for Older Individuals Who are Blind).

Purpose

  • Achieve the $13 million dollar threshold established by Congress in the Rehabilitation Act as the trigger level for Chapter 2 formula funding to ensure that each state receives a minimum level of funding.

  • Achieve a funding level of at least $26 million for the Title VII, Chapter 2 program, a funding level established by state agency directors as the base amount needed to establish a nationwide service delivery program.

AFB Staff

Judy Scott

Priscilla Rogers

Alan Dinsmore

Paul Schroeder

Scott Marshall, Former Vice President, Governmental Relations Group, Washington, D.C.

Mike Hall, Legislative Consultant, Washington, D.C.

Partnerships

National Council of State Agencies for the Blind (NCSAB), which helped to fund the consultant in FY 2003.

Activities

  • Formed a goal 3 working group to expand the existing regional point-person system established in 1998 to focus on Florida, Pennsylvania, Alaska, Illinois, Ohio, Iowa, and Wisconsin to advocate for funding. The group worked with AFB's Governmental Relations Group that included a consultant/lobbyist hired by AFB.

  • Identified and enlisted champions from the House and Senate for the Title VII, Chapter 2 program and educated them about the value and impact of this program. These included the leaders who serve as key committee chairpersons and their staff.

  • Identified the states with key congressional committee members and educated them and their staff about the value and impact of the Title VII, Chapter 2 program.

  • Identified and enlisted individuals within key states to contact congressional leaders and convince them to become advocates for the Title VII, Chapter 2 Program.

  • Produced, updated, and distributed advocacy materials including the Advocacy Tools Kit, op-ed pieces for the media, a video "Program to Independence," a white paper "Making a Difference," and a National Chapter 2 fact sheet.

  • Submitted written testimony to and in-person testimony before the House Subcommittee on Appropriations for Labor Health and Human Services (HHS).

  • Contacted key members of Congress who serve on House and Senate subcommittees.

  • Followed new wording in the Older Americans Act that addresses older persons who are blind, and shared information with point advocates.

  • Presented the AFB Access Award to Congressman Young, Chairman of the House Committee on Appropriations, for serving as a champion to increase the level of funding for the Chapter 2 program.

  • AFB secured the assistance of a legislative lobbyist to guide the advocacy process and timing and to assist with securing appointments with key members of Congress. NCSAB covered the cost of the lobbyist during FY 2004.

Products

Legislative Materials: Advocacy Tools Kit

Video: "Program to Independence"

White Paper: "Making a Difference: Title VII Chapter 2 of the Rehabilitation Act–Independent Living Services for Older Individuals Who Are Blind"

Fact Sheet: National Chapter 2 fact sheet

Outcome/Impact

  • In FY2000, the funding level for Chapter 2 was increased to $15 million, surpassing the $13 million needed to trigger formula funding. Formula funding ensured that each state received a minimum of $225,000, with the more populous states receiving significant funding increases.

  • In FY2004, Chapter 2 programs achieved a funding level of $32 million, far exceeding the goal of $26 million.

  • From FY2001 to 2002, the number of older people who are visually impaired receiving services through the Title VII, Chapter 2 program increased 2.7 percent to 60,000 recipients. The number of people served in FY1999, before the $15 million trigger level was achieved, was 38,140. The number of recipients served has almost doubled as the funding has increased.

  • The Goal 3 group is unable at this time to measure outcomes in terms of the program effects on the recipients. However, through Goal 6 of the National Agenda and a grant from the National Institute on Disability and Rehabilitation Research (NIDRR), an agenda work group has been formulating a national standardized minimum dataset instrument that will make it possible to measure outcomes in the states that adopt the instrument when the testing is completed.

Goal 4 Summary

Goal

Increase the supply of qualified personnel providing vision rehabilitation services to older individuals who are visually impaired.

Purpose

Create a multimodule online training curriculum for new personnel providing vision rehabilitation services to older persons who are visually impaired in state and private agencies, particularly the programs funded by Title VII Chapter 2.

AFB Staff

Alberta L. Orr

Priscilla Rogers

Activities

  • Designed and produced a brochure and packet of information about the vision rehabilitation field for students of Delta Gamma sorority to use to recruit college students into the field of vision rehabilitation.

  • Designed a survey and surveyed personnel of state agencies in the field of vision-related services to determine their potential need for training in the areas of aging and age-related vision loss, particularly for staff new to the field.

  • Developed a core curriculum for employees who are new to the field of aging and vision loss. The curriculum will be made available on AFB's web site and is entitled, "Aging and Vision Loss: A Curriculum for New Professionals in the Vision Field." The curriculum contains 4 modules and 16 chapters that are described in detail below.

Products

Curriculum: "Aging and Vision Loss: A Curriculum for New Personnel Working with Older Persons Who Are Visually Impaired," Alberta L. Orr and Julie Brock, editors

Chapters and Authors:

Module 1

  • Structure and Function of the Rehabilitation Services Administration (RSA): Joe Helm
  • History of the Title VII Chapter 2 Program: Priscilla Rogers
  • Toward a Positive Philosophy of Vision Loss: Becky Criswell
  • Causes of Age-Related Vision Loss, Their Functional Implications, and Low Vision: Dirk Evans and Gerry Niedermaier
  • Demographics of Aging and Vision Loss: Alberta L. Orr

Module 2

  • Psychosocial Aspects of Aging and Vision Loss: Alberta L. Orr
  • Building Self-Esteem and Self-Confidence: Aloma Bouma
  • The Role of Family Members in Vision Rehabilitation: Don Golembiewski
  • Social and Leisure Needs of Older People Experiencing Vision Loss: Lisa Anne Mowerson

Module 3

  • Dealing with Hearing and Vision Loss: Paige Berry
  • Teaching Alternative Skills and Techniques: Maureen Duffy
  • Environmental Modification: Maureen Duffy
  • Cultural Diversity and Developing Cultural Competence

Module 4

  • Public Education about Aging and Vision Loss: Judy Scott
  • Aging Network and Community Service Systems: Julie Brock
  • Social and Legal Issues: Advocating for Improved and Expanded Services: Priscilla Rogers
  • Vision-Related Resources and Community Services: Julie Brock

Outcome/Impact

  • AFB staff members have been unable to obtain results from the recruitment efforts of Delta Gamma sorority.

  • The curriculum has not been pilot tested to determine its effectiveness with the intended audience. However, the intention is to increase the core competencies of staff such as new Chapter 2 directors, who come into the field with little knowledge of either aging or vision loss or both and, thereby provide better service delivery for older persons who are blind or visually impaired.

Goal 5 Summary

Goal

Expand access to employment opportunities for older persons with visual impairments.

Purpose

To carry out activities that will result in increased employment opportunities for older persons with visual impairments.

AFB Staff

Priscilla A. Rogers

Alberta L. Orr

Activities

  • Studied employment rates of older persons with visual impairments placed through the vocational rehabilitation system in 1998 to establish baselines for the goal.

  • Created materials to promote the employment of older persons with visual impairments.

  • Made presentations at conferences such as JVIB.

  • Created an online curriculum jointly with Mississippi State University Rehabilitation Research and Training Center (RRTC).

  • Published articles regarding employment of older persons with visual impairments.

  • Made efforts to establish partnerships with national senior community service employment programs (SCSEPs) such as Experience Works.

  • Created PSAs to promote the employment of older persons with visual impairments.

  • Studied employment rates of older persons with visual impairments placed through the vision rehabilitation system in 2001 to determine change, if any, in rates and determine the impact of the goal activities.

Products

Online Curriculum for Rehabilitation Counselors and Teachers: "Successful Placement of Older Consumers with a Visual Impairment: A Training Curriculum"

Brochure: "Consider Older Workers who are Visually Impaired." The brochure can be used separately or as part of AFB's "Are You Looking for a Few Good Workers?"

Fact Sheet: "Have the 'vision' to retain or hire an older worker who is visually impaired."

Articles:

  • Cavenaugh, B., & Rogers, P. (2002). Employment patterns of older workers with visual impairments. Journal of Visual Impairment and Blindness, 96(9), 655-658.
  • Simpson, M., & Rogers, P. (2002). Strategies for employing older workers with visual impairments. Journal of Visual Impairment and Blindness, 96(9), 672-675.

Outcome/Impact

  • Increased awareness within vocational rehabilitation agencies of the need to consider older persons with visual impairments as viable candidates for vocational rehabilitation services and employment.

  • Used a variety of strategies by professionals in vocational rehabilitation agencies to increase the placement rates of older persons with visual impairments. These strategies include referrals and collaboration between Chapter 2 and vocational rehabilitation programs and working with SCSEP programs.

It is important to note that from 1998 to 2001 the number of competitive job placements of individuals age 55 and older and visually impaired increased by 20 percent. Although this cannot be attributed directly to goal 5 activities, it is a significant change in the employment outcomes among this population during the period when the National Agenda was in full operation.

Goal 6 Summary

Goal

Promote the coordination of data collection and outcome measurement efforts that support the targeted goals of: increased consumer self-advocacy, greater public awareness of vision rehabilitation services, sufficient funding for services, an increased supply of qualified personnel, and expanded access to information and community resources.

Purpose

Create a nationally standardized minimum dataset (NSMD) for use by vision rehabilitation agencies serving older people who are visually impaired.

AFB Staff

Alberta L. Orr, Co-principal Investigator, NSMD

Corinne Kirchner, Co-principal Investigator, NSMD

Dawn Suvino, Coordinator, NSMD Project

Barry Stephens, Consultant, Research and Evaluation

Priscilla A. Rogers, Consultant, Aging and Rehabilitation

Linda Chen, Senior Research Assistant

Partnerships

The NSMD has been field-tested through the cooperation of 14 Title VII Chapter 2 programs. The participating states are Alabama, California, Delaware, Florida, Idaho, Illinois, New Jersey, New York, Ohio, Pennsylvania, South Carolina, Texas, Utah, and Wisconsin.

Activities

  • Created a prototype of a NSMD primarily targeted to collect data for the Chapter 2 program.

  • Secured a 3 year grant from the NIDRR to complete the creation of the dataset, primarily targeted to collect data for the Chapter 2 program. NSMD was created based on the need for data that are national in scope, standardized among all users, and representative of a minimum dataset (i.e., the least amount of data that all agencies serving older people who are visually impaired should collect). The instrument consists of pre- and post-service data including sociodemographic and functional assessment data. The functional assessment allows service providers to capture consumer performance data that are critical to outcome analysis.

  • Formulated and field-tested a participant satisfaction survey. Two or three months after a case is closed, older consumers receive a call from someone outside the agency where they were served.

  • Field-tested the data collection instrument in 14 partnering Chapter 2 programs in Alabama, California, Delaware, Florida, Idaho, Illinois, New Jersey, New York, Ohio, Pennsylvania, South Carolina, Texas, Utah, and Wisconsin.

  • Established and tested a web-based version of
    http://www.NSMD.net
    for use by vision rehabilitation agencies. This will make it easier to use the instrument as well as making outcome data more accessible to agencies that choose to use the instrument. The web site is fully accessible to all users, including those who use assistive technology. Agency administrators, case managers, and service providers can run reports, including the Title VII Chapter 2 program report, the 7-OB reporting form.

  • Presented the instrument for RSA for possible adoption for use with the Chapter 2 programs.

Outcome/Impact

  • Created a stand alone instrument that has been thoroughly tested for use with older persons who are visually impaired. This is quite an achievement for the future of delivery of services to older persons with visual impairments in this country.

  • The instrument was pilot tested in the 14 states. No valid/reliable outcome information is available. However, this instrument will make it possible to measure outcomes of Chapter 2 services in the states that adopt the instrument once the testing is completed.

  • There has previously been no standardized minimum data set available by which to measure outcomes and to determine the overall impact of vision rehabilitation programs. If adopted nationally, this instrument will make this overall goal of the National Agenda reachable.

Goal 7 Summary

Goal

Support the national efforts to secure Medicare reimbursement for vision rehabilitation services.

Note: National efforts for Medicare reimbursement were spearheaded by the National Vision Rehabilitation Cooperative, now the National Vision Rehabilitation Association. The National Agenda supported these efforts.)

Progress was made during FY 2003 in establishing reimbursement for vision rehabilitation services under Medicare. With the passage of the Consolidated Appropriations Act of 2004 (the Omnibus bill), an exciting five year demonstration project will be launched in 2004 to provide national coverage for vision rehabilitation services, which includes services provided by vision rehabilitation professionals. The Appropriations Act also specifies that by January 2005 the Federal Centers for Medicare and Medicaid Services (CMS) will create policy recommendations that will allow vision rehabilitation professionals to provide services in patients' homes and environs. (This has not yet occurred).


How to Find the National Agenda Products

Video: National Agenda on Vision and Aging. Produced in 2002, the video does not tell the complete work of the National Agenda. Length: 8 minutes and 42 seconds. Cost: Free while available; always available on loan. Contact: Alberta L. Orr, Program Manager, National Aging and Vision.

Goal 1

Self-Advocacy Skills Training for Older Individuals Who Are Visually Impaired: Training Manual, Participant Manual, Family Guide to Self Advocacy. By Alberta L. Orr, MSW, and Priscilla A. Rogers, Ph.D. Order from AFB Press. Price: $59.00. ISBN: 0-89128-888-6. Format: Three manuals in a three-ring binder with 18 point print, cassette, ASCII disk. Participant manuals can be duplicated. Availability: Ships in 3-4 days.

Goal 2

PSAs: 411 Spanish PSAs distributed to Spanish radio stations

Public Education Packets containing the following:

  • Booklets: "What You Should Know About Low Vision" in English and Spanish
  • Cards: "Do You Have Trouble Reading?" health fair cards in English and Spanish
  • Posters: "Do You Have Trouble Reading?" in English and Spanish

Available from AFB's Information Center at afbinfo@afb.net and from the AFB Center on Vision Loss in Dallas, Texas. Contact: Judy Scott.

Goal 3

The Advocacy Tools Kit. This packet of materials can be used by professionals and consumers to advocate for issues critical to older people who are experiencing age-related vision loss, such as the increased need for federal funding for independent living skills training. Available from the AFB Center on Vision Loss, Dallas, Texas. Contact: Judy Scott.

Video: Program to Independence. Produced by West Glenn Communications. Available on loan for use in meeting with legislators about the need for increased funding for older people who are visually impaired. Includes short description of Chapter 2 services suitable for presentations. Length: 5:30 minutes. Available from Alberta L. Orr.

White Paper: "Making a Difference: Title VII Chapter 2 of the Rehabilitation Act–Independent Living Services for Older Individuals Who Are Blind, 2003." Available from Alberta L. Orr.

Fact Sheet: National Chapter 2 fact sheet. Available on AFB's web site or at AFB's Information Center.

Goal 4

A Curriculum for New Personnel Working with Older People Who Are Visually Impaired. Many professionals have commented, upon reviewing drafts and extended outlines, that it is a good solid review for anyone working with older people, and especially those who did not have educational coursework in aging and vision loss. Available soon. Contact: Alberta L. Orr.

Goal 5

Online Curriculum for Rehabilitation Counselors and Teachers: "Successful Placement of Older Consumers with a Visual Impairment: A Training Curriculum." An online curriculum; yields 15.5 continuing education credits from the Academy and 10 from the CRC. Available from AFB's partner in this project, Mississippi State University Rehabilitation Research and Training Center on Blindness and Low Vision (MSU RRTC). Available: Fall 2005. Contact: Jodi Roberts, MSU: (662) 325-4683.

Brochure: "Consider Older Workers who are Visually Impaired." The brochure can be used separately or as part of AFB's "Are You Looking for a Few Good Workers?" Available from AFB's Information Center.

Fact Sheet: "Have the 'vision' to retain or hire an older worker who is visually impaired". Available on AFB's web site.

Article: Cavenaugh, B., & Rogers, P. (2002). Employment patterns of older workers with visual impairments. Journal of Visual Impairment and Blindness, 96(9), 655-658.

Article: Simpson, M., & Rogers, P. (2002). Strategies for employing older workers with visual impairments. Journal of Visual Impairment and Blindness, 96(9), 672-675.

Goal 6

A Web-Based Nationally Standardized Minimum Dataset. A data collection instrument to produce consumer outcome data that are useful in program management and evaluation. Consists of before and after demographic data collection as well as a before and after 18-item independent living functional assessment instrument. It is designed to be fully accessible for users who are blind and/or visually impaired. Available at
http://www.nsmd.net.
For information about the project, contact Alberta L. Orr. To subscribe to the instrument, contact David O'Neill, CEO, Daily-e Corporation.


Members of the National Agenda on Vision and Aging Steering Committee

Paige Berry, Older Adult Specialist, Helen Keller National Center and Chair, Association for Education and Rehabilitation of the Blind and Visually Impaired (AER) Division 15 (Aging)

Julie Brock, Past Chair, AER Division 15

Melanie Brunson, Executive Director, American Council of the Blind

Jennifer Dexter, Senior Governmental Relations Specialist, Project ACTION, Easter Seals

Kathy Gallagher, Rehabilitation Specialist, National Industries for the Blind (NIB)

Gail Hunt, Executive Director, National Alliance for Caregiving

Rosemary Janiszewski, Deputy Director, Office of Communication, Health Education and Public Liaison, National Eye Institute, National Institutes of Health

BJ LeJeune, Training Associate, MSU RRTC, Chair, Goal 4

Lorraine Lidoff, Former Director, National Vision Rehabilitation Association

Greg Link, Program Associate, National Association of State Units on Aging

Tom Miller, Executive Director, Blinded Veterans Association (BVA)

Dr. J. Elton Moore, Director, MSU RRTC

Gerry Niedermaier, Past Chair, AER Division 15

Dr. Alfred A. Rosenbloom, Low vision specialist, American Optometric Association

Jeanne Sanders, Alliance on Aging and Vision Loss, ACB Affiliate

Judy Sanders, Chair, National Organization of the Senior Blind, NFB

Dr. Barry Stephens, Co-chair, Goal 6 and Counselor Education Program, University of Alabama at Birmingham

Terri Terlau, Adult Life Project Leader, American Printing House for the Blind



Participants in the National Agenda on Vision and Aging by Goal

GOAL 1 Members

Teddie Remhild, Chair, Goal 1 Working Group, and Past President, Alliance on Aging and Vision Loss, ACB

Marsha Brown, Chapter 2 Program Manager, Board of Education and Services for the Blind, Windsor, CT

Don Golembiewski, Hadley School for the Blind, Winnetka, IL

Laura Mahler, Former VIST Coordinator, Alaska Center for Blind Adults, Anchorage, AK

Tom Miller, Executive Director, BVA, Washington, D.C.

Glenn Plunkett, Former ACB and AFB staff member (deceased)

Rose Prescott, Chapter 2 Program Manager, Sight Services for Independent Living, New Hampshire Department of Education Services for Blind & Visually Impaired, Concord, NH

Penny Reeder, ACB, Washington, D.C.

Jeanne Sanders, ACB, Clearwater, FL

Doris Westfall, Former Director of Programs, St. Louis Society for the Blind and Visually Impaired, St. Louis, MO

AFB Goal 1 Staff

Priscilla Rogers, Ph.D.

Alberta L. Orr

GOAL 2 Members

Ginny Backscheider, Program Services Director, Cincinnati Association for the Blind, Cincinnati, OH

Patricia M. Beattie, President, Council of Citizens with Low Vision International, Alexandria, VA

Paige Berry, Older Adult Specialist, Helen Keller National Center, Richmond, VA

Bryan R. Gerritsen, Low vision specialist, North Ogden, UT

Christine Hall, Past President, National Organization of the Senior Blind, Division of NFB, Albuquerque, NM

Rosemary Janiszewski, Deputy Director, Office of Communication, Health Education, and Public Liaison, National Eye Institute

Bernice M. Kandarian, First Vice President, Council of Citizens with Low Vision International, Mountain View, CA

Dr. LaDonna Ringering, President/CEO, Center for the Partially Sighted, Los Angeles, CA

Dr. Alfred A. Rosenbloom, O.D., The Chicago Lighthouse, Chicago, IL

Dr. Larry Spitzberg, O.D., Houston, TX

Dr. Cynthia Stuen, Senior Vice President for Education & Training, Lighthouse International, New York, NY

AFB Goal 2 Staff

Judy Scott

Liz Greco Rocks, Former Vice President, Communications Group, AFB, New York, NY

GOAL 3 Members

Anita Aaron, Executive Director, Rose Resnick Lighthouse for the Blind and Visually Impaired, San Francisco, CA

William Casto, Director, Bureau of Services for the Visually Impaired, Columbus, OH

Jules Cote, Former Executive Director, Vermont Association for the Blind and Visually Impaired, Winooski, VT

Charles Crawford, Former Commissioner, Massachusetts State Commission for the Blind and Former Executive Director, ACB, Washington D.C.

Glenn Crawford, Former Deputy Director, Bureau of Blind Services, Illinois Department of Human Services, Springfield, IL

Rebecca W. Criswell, Chapter 2 Program Manager, Iowa Department for the Blind, Des Moines, IA

Bill Gibson, Director, Utah State Office of Rehabilitation, Salt Lake City, UT

Gary Haug, Former Director, Washington State Department of Services for the Blind, Olympia, WA

Nancy D. Miller, Executive Director, VISIONS/Services for the Blind and Visually Impaired, New York, NY

Steve Pouliot, Director, Vermont Association for the Blind and Visually Impaired, Burlington, VT

Jane Ward Solomon, Program Director, Rehabilitation Teaching and Independent Living Services, Virginia Department for the Visually Handicapped Richmond, VA

Frank Synoground, Assistant Director, Rehabilitation Services, Oregon Commission for the Blind, Portland, OR

State Advocates

Robert Lamb, Case Manager, Office of Vocational Rehabilitation Bureau of Blindness and Visual Services, Pittsburgh, PA

Roxann Mayros, Executive Director, National Council of Private Agencies for the Blind, St. Louis, MO

Dick Pomo, Wisconsin Council of the Blind

AFB Goal 3 Staff

Judy Scott

Priscilla Rogers

Alan Dinsmore

Scott Marshall, Former Vice President, Governmental Relations Group, Washington, D.C.

Paul Schroeder

GOAL 4 Members

B.J. LeJeune, Chair, and Training Associate, MSU RRTC, Mississippi State, MS

Dr. Grace Ambrose, Coordinator, Vision Rehabilitation Program, Hunter College, New York, NY

Becky Brown, Delta Gamma Foundation, Service for Sight

Maureen Duffy, Director, Graduate Program in Rehabilitation Training, Pennsylvania College of Optometry, Elkins Park, PA

Dr. Jane Erin, Associate Professor, Department of SER, College of Education, University of Arizona, Tucson, AZ

Dirk Evans, Former Staff Member, Idaho Commission for the Blind and Visually Impaired, Boise, ID

Carolyn Hoppe, University of Arkansas at Little Rock, Little Rock, AR

Elisa Jenkins, Chapter 2 Program Manager, Delaware Division for the Visually Impaired, New Castle, DE

Lynda Jones, Past Chair of Goal Group and Coordinator, Rehabilitation Teaching Specialization, Visual Disabilities Program, Department of Special Education, Florida State University, Tallahassee, FL

Lisa Anne Mowerson, Former Director of Rehabilitation, Pittsburgh Vision Services, Pittsburgh, PA

Gerry Niedermaier, O&M Specialist, Badger Association for the Blind and Visually Impaired, Milwaukee, WI

William Sansing, Research Associate, MSU RRTC, Mississippi State, MS

Dr. Patricia Smith, University of Arkansas at Little Rock, Department of Rehabilitation, Little Rock, AR

Catherine O'Farrell, Program in Visual Impairment, Florida State University, Tallahassee, FL

Sharon Schwalm, ABVI-Goodwill.com, Rochester, NY

Dr. Barry Stephens, Counselor Education Program, University of Alabama at Birmingham, Birmingham, AL

Dr. Bill Wiener, Dean, Western Michigan University, Kalamazoo, MI

AFB Goal 4 Staff

Alberta L. Orr

Priscilla Rogers

GOAL 5 Members

Kathy Gallagher, Chair of Goal 5 Working Group, rehabilitation specialist, NIB, Alexandria, VA

Peggy Anderson, Alabama Department of Rehabilitation Services, Montgomery, AL

Mike Beck, Program Administrator, Vision Services, State of North Dakota Vocational Rehabilitation, Bismarck, ND

Paige Berry, Older Adult Specialist, Helen Keller National Center, Richmond, VA

Julie Brock, Program Coordinator, Alabama Department of Rehabilitation Services, Homewood, AL

Rita Houston, Program Manager, Title VII Chapter 2 Program, Alabama Department of Rehabilitation Services, Montgomery, AL

David Jeppson, Dallas Regional Director, Texas Commission for the Blind, Dallas, TX

Zeze Miller, Chapter 2 Program Manager, Missouri Division of Family Services, Rehabilitation Services for the Blind, Jefferson City, MO

Marie Simpson, Division of Blind Services, Orlando, FL

Frank Synoground, Assistant Director, Rehabilitation Services, Oregon Commission for the Blind, Portland, OR

Helen Thomas, Division of Blind Services, Orlando, FL

AFB Goal 5 Staff

Priscilla Rogers

Alberta L. Orr

GOAL 6 Members

Dr. Barry C. Stephens, Co-chair of Goal 6 Working Group; Assistant Professor, Counselor Education Program, School of Education, University of Alabama at Birmingham, Birmingham, AL

Dr. J. Elton Moore Co-chair of Goal 6 Working Group, Director, MSU RRTC, Mississippi State, MS

William Casto, Director, Rehabilitation Services Commission, Bureau of Services for the Visually Impaired, Columbus, OH

Dr. Judith L. Babcock, Research Scientist, Southwestern Blind Rehabilitation Center (3-124), Southern AZ VA Health Care System, Tucson, AZ

Dr. William R. De l'Aune, Research Psychologist, Rehabilitation Research and Development Center, Veterans Administration Medical Center, Decatur, GA

Dr. Greg Goodrich, Research Psychologist, Veterans Administration, Palo Alto, CA

Dr. Dan Head, Coordinator of Research, Southwestern Blind Rehabilitation Center (3-124), Southern AZ VA Health Care System, Tucson, AZ

Dr. Edna Johnson, Former Program Officer, Title VII Chapter 2 Program, Independent Living Services for Older Individuals Who Are Blind, U.S. Department of Education, RSA, Washington, DC

Jane Ward Solomon, RT/IL Program Director, VA Department for the Visually Handicapped, Richmond, VA

Delores Watkins, OSERS, National Institute on Disability and Rehabilitation Research, Washington, D.C.

Dr. Richard L. Welsh, Former President, Pittsburgh Vision Services, Pittsburgh, PA

AFB Goal 6 Staff

Alberta L. Orr, Co-principal Investigator, NSMD

Corinne Kirchner, Ph.D., Co-principal Investigator, NSMD

Dawn Suvino, Coordinator, NSMD

Barry C. Stephens, Ph.D., Research Consultant

Priscilla A. Rogers, Ph.D., Consultant, Aging and Rehabilitation

Linda Chen, Senior Research Assistant

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