SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Posted by xDebbiex on 2/16/2008 at 5:13 PM

EMAIL SUPPORT GROUP FOR ANYONE WHO HAS EXPERIENCE OF SIGHT LOSS. IF YOU HAVE A CHILD WHO IS VISUALLY IMPAIRED/BLIND, OR ARE YOURSELF A PARENT WHO IS VISUALLY IMPAIRED.

AS A MUM OF A LITTLE BOY WHO HAS BEEN BLIND SINCE BIRTH, I KNOW HOW DEVASTATING & OVERWHELMING IT CAN ALL BE. THAT'S WHY I CREATED THIS ON-LINE COMMUNITY SO WE CAN GET TO KNOW EACH OTHER, MAKE NEW FRIENDS, AND OFFER SUPPORT WHEN NEEDED. WE ALL HAVE SO MUCH TO GIVE AND BY SHARING OUR OWN EXPERIENCES WE HELP GIVE OTHERS ENCOURAGEMENT & INSPIRATION.

IF YOU WOULD LIKE TO JOIN US PLEASE EMAIL ME AT debghope@hotmail.com.

LOOK FORWARD TO HEARING FROM YOU
DEBBIE

There are currently 16 replies

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

hello my name is diane and i have a child with LCA anyone who like to write me my e mail is swdian@yahoo.com

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

hello to everyone i have a 9year old who has LCA and i am looking for parents with this problem and how to deal with it. please contact meswdians@yahoo.com

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hi,
my name is dorothy and I have a 5 year old who is blind in one eye and has very low vision in his other eye. It has been a rough road since his birth, but there have been many joys also. Every day he teaches me how stubborn he can be and how independant also. I hope that if it ever comes a day that he goes totally without sight I can handle it, but knowing my little boy he will be braver than me.
But sometimes when I am going thru the Dr. proceedures I sometimes think that I am putting him thru so much. I just don't know the answers sometimes and i don't think i ever will.
I wish i had a local support group in our town, Our VI teacher is great and very creative, but I think she thinks i am in denial about my sons condition.
Write back if you want to talk.
Dorothy

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

I am a new teacher just learning how to best serve students with special needs. I chose to do my research project on elementary students with visual impairments. As parents of kids with visual impairments, is there anything that schools do right or wrong in educating your children? What are some of the biggest challenges of keeping your child in the regular classroom? Have you found any certain devices that really help your child in the classroom? What are your opinions on having a full-time assistant with your child during the school day? Any information you would like to share would be most helpful. As a parent myself, I know that no one knows what works best for my child better than me, so please feel free to share. My email is kapennycuf21@tntech.edu. Thank you.

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hello, my name is Shanna. I am the mother of a son who is legally blind. Jordyn just turned five. He is my only child and is extremely hyperactive. By this I mean that he continuously is talking, even to himself, repeating everyone, jumping in place and running about five feet back and forth repeatedly. I have been told that blind children have built up energy because they are unable to run around freely like Children that have full vision capabilities, but I am uncertain that his vision is the problem or if it is something else. He is starting kindergarten this year and they have told me that if he continues to act as he does he will be unable to attend school in the regular population. I desperately need some information from other mothers with visually impaired children to find out what I can do or if you guys are experiencing the same problems. Please contact me I need your help.

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hello, my name is Shanna. I am the mother of a son who is legally blind. Jordyn just turned five. He is my only child and is extremely hyperactive. By this I mean that he continuously is talking, even to himself, repeating everyone, jumping in place and running about five feet back and forth repeatedly. I have been told that blind children have built up energy because they are unable to run around freely like Children that have full vision capabilities, but I am uncertain that his vision is the problem or if it is something else. He is starting kindergarten this year and they have told me that if he continues to act as he does he will be unable to attend school in the regular population. I desperately need some information from other mothers with visually impaired children to find out what I can do or if you guys are experiencing the same problems. Please contact me I need your help. My email is imcherish@hotmail.com

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN Benefit of Yoga and Prayanam

Dear friend,I am from India and I am blind by right eye due to cataract then before retina detactment and left eye having spactacle for near and distant.I consulted with so many doctor but no one give perfect treatment or said my problem is critical and there is no perfect medicine for this but once I heard about Yoga and Prayanam and started the both then after six month my spactacle removed and my blind eye becoming healthy but slowly.So you can easily find Yoga and Prayanam Classes in your location if you life.
S Bargate

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

I am a Yoga Therapist working with Vision Impaired and Blind adults and seniors in New York City. We have made some rather amazing strides in the area of spatial awareness and fall prevention as well as quality of life. I do not mean to solicit on this site, but I would like to help. If anyone is interested, please contact me through this site. I would really like to find ways to share with people in different locations, the benefits of we are experiencing here in New York City. Peace and Blessings, Priya Ma

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hi I am mother of a 4month old and we just found out she is blind, they said she has optic nerve hypoplasia. I am freaking out and would to talk to other parents who can give me some advice. I am trying to stay strong for i also have a four year old son and i am not sure if i should tell him about his sister or not. you can email me @ holeinmouth@yahoo.com

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

My name is Sahr Lebbie and I am an older brother of a blind child(9years). His only disability is his vision but because of that, there are things that hinder his progress in leaning daily life movements. I am 24 and just graduated from college and would be leaving the house soon to attend grad school and then hopefully start my life after that. I want to help him as much as I can before I move out. I know I will always have to help him out from time to time but I just want him to learn the basics so he can be self-sufficient by the time he is in his late teens. I guess what I am asking for is advice and counseling if possible. (toy suggestions, events, games, groups, etc...anything that will help further him) My email is Sahrtex23@gmail.com. Feel free to email me anytime, Thanks and God Bless.

SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

SUPPORT GROUP FOR ANYONE WHO HAS EXPERIENCE OF SIGHT LOSS. IF YOU HAVE A CHILD WHO IS VISUALLY IMPAIRED/BLIND, OR ARE YOURSELF A PARENT WHO IS VISUALLY IMPAIRED.

AS A MUM OF A LITTLE BOY WHO HAS BEEN BLIND SINCE BIRTH, I KNOW HOW DEVASTATING & OVERWHELMING IT CAN ALL BE. THAT'S WHY I CREATED THIS ON-LINE COMMUNITY SO WE CAN GET TO KNOW EACH OTHER, MAKE NEW FRIENDS, AND OFFER SUPPORT WHEN NEEDED. WE ALL HAVE SO MUCH TO GIVE AND BY SHARING OUR OWN EXPERIENCES WE HELP GIVE OTHERS ENCOURAGEMENT & INSPIRATION.

IF YOU WOULD LIKE TO JOIN US PLEASE EMAIL ME AT deb.hope@hotmail.co.uk or find us on facebook Hope for sight - for families/friends of visually impaired children


LOOK FORWARD TO HEARING FROM YOU
DEBBIE

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hi...Today after five years of waiting for a diagnosis...I finally got one...I am 34 and a mother to 4 children..In my last pregnancy, in 2005 I became visually impaired, I went for test after test and to Moorfields in London, but no consultant could find the answer..Thankfully, my vision didnt deteriorate any further..Until this year I started experiencing more flashing lights and a little more impairment..Today I went to the hospital and have been told I have an incomplete PVD and Azoor...If there is anyone out there who has had these experiences I would be so pleased to hear from you...And if anyone knows of the likely prognosis would gladly hear from you to..Sight is something I took for granted, much like other people; until now....please email laurayoulden@yahoo.com

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

My 22 years old has just become blind in Sept 23 this years. we are looking for some help on support. I dont know where to go or what to do to help her but to be there for her.

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

hello my name is jenniffer i have a 4yr old daughter who is completely blind im only 23 and i have a hard time excepting the fact she cant see shes fully mobile and is very smart but its her vision. i cant seem to get over this and i wish there were somethin i could do. i am also depressed so it makes things that much worse

Re:SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

My name is Kaci, I live in Grand Prairie, TX and I am 25 years old. My daughter is 3 1/2 years old now and has been legally blind since birth. When she was about 3 months old we found out she has Optic Nerve Hypoplasia. She has several different doctors she goes to and therapy and it can be very overwhelming having absolutely no support from her dad or friends.

Re: SUPPORT GROUP FOR PARENTS,FAMILIES & FRIENDS OF VISUALLY IMPAIRED CHILDREN

Hello,
My 2.5 year old daughter has cortical visual impairment along with multiple developmental and physical disabilities, and no speech. I am wondering if there are any families out there that have a child with CVI that can give me some insight on what to expect or what their children's quality of life is. For example, is s/he in a special school, can he/she read, write... what his/her abilities are etc. I'm am in such a dark place right now and I need something to hold on to. If you are dealing with CVI, let's connect.
volley24@gmail.com

Sara