Searching for Support as a mom with a newly blind son

Posted by dztsmith on 3/15/2012 at 3:30 PM

Hello - I'm new here. I've been searching for a forum to find parents who may have gone down this road before. My 8 year old son has lost his sight due to uveitis just in the last year. He's always been such a happy child despite other challenges he has such as hearing impairment and juvenile arthritis. Now he's beginning to lose his spirit. I'm just out of my mind with fear and worry. I'm trying my best to get him excited about all the new things he's learning (braille, cane, etc.) but it's so new to me that I'm struggling. Anyone else have a child that has lost their sight in gradeschool?

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Re: Searching for Support as a mom with a newly blind son

Hi! That sounds really tough - even adults who lose their site later in life have a difficult time adjusting. I'm sure a child would find it even more difficult!

Have you thought about joining the BVI-Parents Yahoo list? It's a very active group with parents dealing with all sorts of issues - you may find someone there who can give you advice:

http://www.wonderbaby.org/resources/bvi-parents-ya...

Amber