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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Blind and Austistic Children

I have a 9 year old son who is blind and on the autism spectrum. Does anyone have a similar child attending school and is your child going to a public or private school? Are you sending them to an autistic program or otherwise? I am interested in hearing your story.

Thank you.

Holly

There are currently 41 replies


Re:Blind and Austistic Children



Hello, my name is Lyndsay. I specialize in working with children on the Autism spectrum and also have experience working with children with other disabilities. I have a lot of information I can offer you. Unfortunately, when it comes to the Autism issues, where you are located can often determine the kinds of services that your family may be offered. A great sight for information is the Autism Society of America.
I'd be happy to help in any way that I can. One question, what types of excesses and deficits (other than sight) dose your child experience?
Hope I have helped some!


Re:Blind and Austistic Children



My son Matthew is on the Autism Spectrum. He is currently 4 yr old and is mainstreamed in an integrated preschool. He is totally blind. He receives all the appropriate services -except- 10 hrs/week direct service by a board certified ABA specialist (as recommended by a recent eval). The school is in the midst of trying to do the ABLLs test which has to be completely modified for his blindness. Right now he is making progress however slow (1.5yr delayed). I feel strict ABA method of teaching will help speed up his progress. However, he is a very endearing boy and I don't want to break his wonderful spirit.


Re:Blind and Austistic Children



This is Holly again. I posted in 8/06 re: my son who is blind and autistic. In response to Lindsay's post, my son just turned 10 and seems to have light perception as he gets around fairly well. He tends to gaze down and it's hard to determine how he navigates so well considering he looks like his eyes are closed most of the time. I think he sees shadows. All opthalmologists we have seen, a least 4 to say the least, say that his optic nerves are very small and glasses won't help. We all agree he seems something though as he knows when he nears a step (sometimes).

His autistic behaviors include hand flapping, hitting himself in the nose bridge area, constant rocking side to side when standing. He tends to sing a lot, repeats expressions or things he hears us say or on the radio, echolalia, when frustrated or made he may try and bite or just scratch you. We all agree his behaviors go beyond blindisms and resemble autism.

He is currently enrolled in a private school for autistic children where he gets 1:1 from an ABA approach. He is their first and only blind student and it's challenging. His averse behaviors have minimized since enrolled in the program but he doesn't get vision instruction, O & M. Speech or OT there and our local school district is so far from the school they won't provide services. We do have him enrolled in therapuetic horseback riding which he seems to enjoy.

I would like to put him into another school, possibly public, so I can get the other services he needs, but I always get the run around and just want 2 hours of ABA each day in his IEP. He's special and 1:1 really helps him. I am afraid to move him though as I may not get 1:1 for him.

Any thoughts from others are always greatly appreciated.

Holly


Re:Blind and Austistic Children



HELP! My cousin married a women that has a son who has autism and is blind. Not sure of full diagnosis but he can not speak, has had several episodes that have landed him in the hospital, and is getting too big for the rough housing that he does when he gets excited. My cousin and aunt are desperate for help because our school system doesn't offer enough resource help. HELP PLEASE!!


Re:Blind and Austistic Children



I'm raising my autistic 10 year old niece and autistic/blind 8 year old nephew. My nephew is a rough and tumble boy and to calm him I use lots of sensory and pressure techniques. Brushing if done properly can also help have an OT show you the proper way.

Give an autistic a full "sensory diet". (google for lots of examples)

Alex is now in public school and I've been lucky to deal with great people at this school (not always the case).

Another thing I've learned is to be firm and be consistent I have experienced people who "baby" special needs kids and they create victims.

Good luck!!!!


Re:Blind and Austistic Children



Hi, I have a blind and autistic soon to be four year old son. He is currently on Epillum for possible epilepsy, although has never had a fit and the EEG when last done, was clear. He is also on Risperdal for his biting/scratching/pinching and kicking, which he does rarely and usually only when frustrated. He only gets 9 hrs of ABA therapy a week and I'm petrified this is not nearly enough, but we live in South Africa and there are no govt grants, assistance or support for the disabled here and ABA is incredibly costly over here. What techniques/tips have you found that work for your child besides ABA? We have tried the gf/cf diet too which doesn't really make a huge difference that we notice. He has moments of clarity where he will answer us spontaneously and talk to us appropriately and then the next second he's back to nonsensical talk again. My major problem here (I do apologise for the long post) is his screaming. He will wake up repeatedly throughout the night and scream for food. He will not use his words at all, will just scream until we feed him. I realise by giving in to him we are just feeding his bad behaviour, but we have baby twins and an older sister who is now falling asleep in class as she is so exhausted due to this. Besides being absolutely exhausted on a daily basis, we are also hugely stressed with this screaming at the top of his voice, but we just don't know what on earth to do! HELP? Anyone have any ideas? I don't want to be too harsh, and nor do I want to pander to his every need either! Thanks for listening.


Re:Blind and Austistic Children



Hello everyone. I to have a blind autistic child. She is four years old. I live in colorado. I am not getting the right help for her either. She is in the deaf and blind school for now. But they can not handle the autism. They are not educated on that part. So, I have to pull her out of that school for next year and put her in a class room of fifteen children, one teacher and two aids. I have to pay out of pocket to get ABA services. Right now, she only gets six hours a week. I have found this program called AUTISM PRO on the internet. I have been using it. It REALLY helps educate an autistic child. Their is also a three week trainning course at a place called JUDEVINE CENTER in St. Louis Mo. They teach you how to use ABA


Re:Blind and Austistic Children



I have a son who is blind and has asperger's syndrome. He just turned 17. He attends a regular high school and is mainstreamed in all of his classes. He has a full time aide that stays with him during school hours. This summer we had a very hard time with him, which I am finding out is not uncommon with autism and adolescence. The doctors, my husband and myself all felt that he should be hospitalized for adjustment of medication. This was a very hard decision, however for my childs safety we agreed. Unfortunately he did not and we had to go to court. Then tragically no facility in the state we lived in would accept him. His doctor felt it was mainly due to his blindness. Fortunately and with the grace of God, he is doing much better. If I can be of any assistance please let me know. These children are beautiful souls and deserve just as much as any other child/person does.


Re:Blind and Austistic Children



I also have a daughter who is blind and Austistic. She is almost six. She is totally blind and is non-verbal. She seems to understand a lot. She can follow simple commands so I know she can learn to communicate. I could really use some help!


Re:Blind and Austistic Children



I have a 37 year old blind autistic son. Never repeat never give up on them. my son can pick up any instrument and play it in minutes. he lives by himself and cleans it himself. he may be slower than most but he is AWESOME. he went to the school for the blind in iowa for 18 years. they taught him home skills and school there where normal school would of never worked. he needed one on one and they gave it all to him. it is terrible sending your child away but you do it for them and not for you or what anyone says about it.. you do it them because you love them.


Re:Blind and Austistic Children



Hi- My name is Janet. I am an ABA Trainer for a blind autistic boy who is 14 years old. He is severely autistic, has no form of communication, very low functioning. He started going blind about 1 year ago, we still are not sure of the cause, however his optic nerve has atrophied. I have no training in teaching the blind, but I am using common sense when working with him. Meaning I am trying to teach him basic skills such as using his hands to feel his way around. He goes to a AHRC school with children who have many different handicaps but all of which are severe. I woud lke to know where I can receive traing to help him with this additional handicap.


Re:Blind and Austistic Children



I would love to say a lot. Tho, I will just relate that I am amazed to find more blind/autistics than I'd wanted to. I have to agree with some of you regarding diet. My son is both blind and autistic, and he is also short in stature. I was 4-5 months pregnant when I had to receive a tetanus vaccination at work. I believe like 95 % of folks in my country that "thimerasol" (mercury preservative) is the culprit. The mercury cannot escape the body, burns the fibers on the nerve endings in the brain so dairy for sure and some glutens and wheat cannot break down. Causing crazy behaviours and intestinal problems, as well as skin disorders, as the skin is the final escape. Along with voice expression. If anyone would like to have more info from me, or needs to just share, I would be happy to give all I have. Take care. It is a disgrace out there regarding the positive back up we need. Maureen.


Re:Blind and Austistic Children



I wish you all would give your e-mail address when you write these so that everyone could get a direct dialog with these people. I know I would appreciate sharing stories and getting ideas from other moms that live this everyday. I am only 22 years old and have a 5 year old blind/autistic son. Highly autistic, although he he very lovey and doesn't act out physically ever. No speech and the killer for me is that he still drinks a bottle! We have been in therapy for 4 years now trying to get him to eat anything. The doctor says it is a part of his autism, like a security thing. I don't know what to do anymore, it's so frustrating. For both he and I. Loves and responds to music. I am looking into stem cell therapy, anyone heard of it? I would love to hear back for anyone. aimeeemfinger@yahoo.com


Re:Blind and Austistic Children



I have a son who has been blind from birth. He just turned 6. He is in a visual imparied program in a local Elm school. They just labeled him with ASD. Which I really had a hard time with. I just am not sure if he really has Autism. He is Exstreamly smart. And Does not display some of the "tipical" Autism traits. But His speech has always been delayed. I have had a really hard time finding any info on Children with both disablities. Can Anyone give me any info on where to start. like where to get more info on Children with Both. And I would love to chat with other moms going threw or have gone threw this. so please feel free to contact me. fldavis2002@aol.com.


Re:Blind and Austistic Children



I am an aide at a high school and working with a blind, autistic 19 year old boy. There is nobody on the staff here that is really qualified to deal with this and who knows what kind of activities would be beneficial for him. How can I find out what is right for him. Are there any resources that can help me figure out the right thnig to do? PLEASE HELP. You can e-mail me directly if you want at kdrsmorgan@att.net

Donna


Re:Blind and Austistic Children



Hi, I live in England and I have a 9yr old girl who is totally blind and is on the Autistic Spectrum. She currently attends a school for the blind and boards 4 days a week. There has been nothing suitable to suit her needs and know one seems qualified or experienced to educate her or us as a family. From reading the messages, most families are finding it difficult to find the right provisions. What I am looking for is training courses, doctors, teachers, schools or just people who are experienced or trained to work with both blindess and Autism. I would like to make contact with someone in these areas to gain knowledge on possible aims and teaching stratagies so I can help my daughter develop further. I feel like in some ways the system is failing us and I need to take the matters into my own hands. If anyone knows anything or has some important information that may help, please reply to this post. Many thanks.


Re:Blind and Austistic Children



Hi, My son (11 years) is blind and autistic, also intellectually deficient. We live in Switzerland. He goes to a school for mentally handicapped children. He is the only blind child there. I find it hard to cope. He is a sweet fellow, but there are so many problems. Why are these kids saddled with so many issues? I feel all alone - can't even relate to families with mentally handicapped children, at least their children can see. Write to me at meenu@vtxmail.ch if you want to chat.


Re:Blind and Austistic Children



hey, my nameis Darrell, i live in the UK, i have a 7 year old daughter that was born 3 months early and was diagnosed with an eye condition called Microscropthalmia (small eyes), at the age of 3 years old she was then diagnosed with autism and server learning and behaviour diffculties.

At the age of 5 years, she was placed on the child protection register in kent, and now we face a court battle to keep her in the family home.

If anyone else has experienced this the please reply to this post,any help would be greatful.

Many thanks


Re:Blind and Austistic Children



Hello! We live in New Mexico and have two sons who are blind and have autism, aged six years and three years! 6 year old has many challenging behaviours and the three year old is non verbal but SEEMS higher functioning.I would LOVE to hear from any other parents in the USA in our situation!! We moved to USA from Cape Town, South Africa as my husband was transferred here and I am really looking forward to meeting parents (online or in person) in our situation!!! Please email me : louisewinquist@hotmail.com


Re:Blind and Austistic Children



Hey everyone!

Stay hopeful. I too am in a tough situation. I am 24 years old, interning as a speech therapist at a High School in Miami, FL. It seems as though teachers don't even KNOW what to do! I've been reading, researching, asking professors, asking Dr.'s but these students are in the minority.

Well..... I've heard that Auditory Integration is an excellent start! I will commence this by trial and error starting next week with a 16 year old, low functioning, severely autistic and blind boy.

------> The post by dsitkowski on 09/10/2007 was encouraging. How did you help your son improve?

Anyone else have suggestions?

Best,
Mailin


Re:Blind and Austistic Children



I am 28 and have a 5 year old son that was born completely blind.(optic nerve hypoplasia) About a year ago he was diagnosed with autism. Up until then we had thought that his only disability was his blindness although we thought he was developing slower than we thought he would. We have come to realize that his autism is his real disability. We have found it extremely difficult to find any real support for him and his issues/behaviors. I would love to hear from anybody out there dealing with some of the same things. My email is eddycuzisaidso@aol.com


Need Help



I have a 5 year old nephew who was born completely blind. He has a delay in everything. He has just learned to walk. I know that he understands us and he tries to communicate to us. He didn't acquire speech. A speech therapist managed to make him pronounce a word or two but unfortunately she is located in a different city. Also unfortunately in the country where i am located, they don't have the education of teaching blind child to speak. So I need guidance so I would do it myself. Does anyone able to help me, pleaseeeeeeeeeee :(
leeds77@hotmail.com


Re:Blind and Austistic Children



Hi everyone, my daughter is 10yrs old has septo optic dysplasia(blind and pituatary issues) and is autistic. She has been going to a school for the blind since she was 3yrs old but I'm considering switching her to a school that has a program designed for autistic children. The problem is finding a program that can manage both, b/c so far the specialist for the blind don't deal with the autism, and the people who deal with autism don't have experiance with the blind. I am so frustrated.


Re:Blind and Austistic Children



Hello everyone...

We have been parenting a blind child with autism and cognitive delays for a few years.

I am wondering if anyone has experience with Mellaril?

Our child has become much more tolerant of his environment...but seems to have lost some of his desire or ability to navigate.

He is using his self-taught echolocation system less, and seems to be less inclined to use protective techniques.


Re:Blind and Austistic Children



Hi Everyone,

I am a mom of two with Autism - my daughter with SOD (septo-optic dysplasia - totally blind + hormonal deficiencies) and Autism, 10, non-verbal, very delayed, etc, and son, 5, PDD.
We have tried 3 programs with my daughter, until we were able to adjust the local ASD program for her, with a lot of support. This works for now, but she is due to transfer next year to middle school. Anyway....I can go forever here, what worked, what did not...Anyone interested, you can contact me at BSPAngeli@Gmail.com


Re:Blind and Austistic Children



I have a 7 year old blind autistic son. He suffers from ROP with retinal detachment. He now attends a separate school for special needs students but I am looking for him another school because I think it will be a better fit for him. I am interested in talking with others who also have blind and autistic children for support and information. I live in the Charlotte, NC area. Please feel free to email me at 2sdayh@gmail.com


Re:Blind and Austistic Children



I am a single parent of two kids. My daughter is 7 and has a slight language delay, but my 6 year old son is 100% blind (RoP) and severely artistic.

For those living in the US, the following is incredibly important!

1) There are laws that guarantee solid treatment for disabled people, particularly children. Get ahold of the full text on all of the Federal, State, and local education and disability laws and study them thoroughly. Note anything that is useful to you, and understand the caveats written into the laws.

2) The education system here is a money game, and is severely underfunded at best. The districts have to pay for everything with the little they have to work with. That being said, the Law clearly stipulates that financial concerns may not be considered when determining services for your child. Of course, in a cash-strapped district, this is generally not going to be the case. They are going to want to do as little and as cheap as possible, and you will have to fight every step of the way.

3) Autism is still not very well understood, and few people have any training and even fewer have the thorough training and experience needed to treat this disease. Rarer still is the blind/autistic dual diagnosis, so there are even fewer experts. Even if your district is not considering cost, there is much that they just don't know. Most likely, you know more than their specialists. Keep in mind that the Autism (if moderate to severe) is the primary diagnosis. Keep the focus on the Autism so that they don't waste the time focusing on the vision, which will work itself out. My son gets around quite well and runs into things less than my sighted and neuro-typical daughter!

4) You are your child's ONLY advocate. If you really want solid treatment, fighting for it will be your full time job. Do not make the mistake of approaching IEPs as if the district is on your side! An IEP is a tactical battle in an endless war. You have to come to the meeting fully armed with a thorough knowledge of applicable law, as much dirt as you can dig up on your district, and the names of a few good lawyers. Go in letting them know that you aren't playing games or laying down. Let them know that you will not hesitate to take them to court. Remember, court battles will cost them far more than just treating your child.

5) Find all of the resources available to help you. For instance, IHSS pays a parent for staying home with their child. Regional Centers provide lots of services too, and they are the ones funding the residential portion of my don's schooling at Jr Blind. SSI gives a bit of financial help too.

Despite what some would say, placing your child in a good residential program is not deserting them. Kids that are blind and artistic need a lot of support. At home, after your child gets off of school, you as the parent still have to cook, clean, pay bills, play with each of the children, etc. In a residential program, they are continuously learning with direct 1on1 attention, support, and teaching for all of their waking hours! Your child will have a better chance of becoming independent when they grow up in a program like that than if they stay at home getting less help.


Thus far, I have moved us to 6 different states trying to get help for my son before I found that you just have to stay and hammer them until they give your kid what they need. It's a long struggle, but it's necessary and in the end rewarding.

Finally, as of 3 months ago, my son was placed by the district at a private foundation called Jr Blind Foundation of America, located in Los Angeles, Vs. It is an amazing program that specializes in dual diagnoses and one-on-one instruction. Next month, my son will start the residential program, and we are all excited to see how well he does. One thing nice about being in a private program paid for by the district (and the Regional Center) is that they don't care about cost because they just do what what the parent asks for in the IEP meetings, and the district has to pay for it, so they can provide the best possible treatment and training for my son! There are several programs like it around the country...you just have to convince your district to put it in the IEP.


Hope this is helpful! Please don't give up or settle...your kid's future fully depends on it!

If you have any questions for me, email any time.
whisperlupine@gmail.com


Re:Blind and Austistic Children



Hello. I'm new to this website and hopefully I can get some good feedback. Our 13 year old son is blind and has autism. I'm wondering if anyone knows of any good software for him? Something that he could do on the computer, maybe that has music involved, etc. He has an Intellikeys, but I'm not finding too many things he can do with it that aren't preschool songs.

Any suggestions you all have would be great! Thank you!


Re:Blind and Austistic Children



My son, Jacob, is 7 years old. He has Anophthalmia (no eyes) and severe Autism. He is losing language and becoming more aggressive and more self-injurous everyday. At his last IEP meeting the school told me they lost his Autism diagnosis and they have no Autism specialist on his team. So even though he has been diagnosed for 9 months, they have done nothing. They do not have Autism on his IEP at all.

His doctor has told me that we are "losing" him and we will never get him back unless we do something drastic very quickly. His school has not responded despite several attempts on my part to get a new IEP meeting.

Anyway, I am very frustrated. I work for the school district we live in and I think that actually may hurt us instead of help us. We were thinking about moving but after reading other posts I am not sure if that is the best route. Plus, how do you know to where you should move? If I call other school districts and ask if they have the resources for my severely disabled child I get the same old "an IEP is an individual education plan. We make decisions on a case to case basis." This is not helpful.

Jacob's doctor insists that Jacob needs intense one-on-one therapy for 25-30 hours a week. He is getting nothing. My insurace does not cover Autism treatment. If we do not go through the school district, we will have to pay everything out of pocket.

Actually, I thought that insurance had to pay for Autism treatment. I know that I read just recently that in Missouri Autism treatment must be covered by insurance. My insurance says that nothing is covered. I do not know why there is a discrepency.

Blah!!!!!!!!!!!!!!!!


Re:Blind and Austistic Children



yes i also have a son that has lebers amneurosis he is totally blind autistic he doesn't talk i am thinking about putting him in a residental program any suggestions


Re:Blind and Austistic Children



Hi, I have a son who was born blind he was diagnosed with retinoblastoma but as he grew I discovered that he started have some kind of behaviour like hand flapping, hitting himself in the chest area, constant rocking side to side when standing. He tends to sing a lot,he enjoys music a lot, repeats words he hears, when frustrated or made he may try and bite or just scratch at anything closest ???? him.he screams lot when hungry cos he does doesn't communicate with anybody his feelings, I know when he ?? hungry, when wet cos he ?? still on diapers I tried ???? potty train him but I got frustrated ????? gave up so he ?? on diapers even till now. I have tried looking for school for him but there's none with both condition in nigeria, I need help ????? advice please on which school can admit him in †?? uk.this ?? M????????? email address parachbooks@yahoo.com. I need help for M????????? son. PLEASE HELP

Thanks


Re:Blind and Austistic Children



Hi, I have a son who was born blind he was diagnosed with retinoblastoma but as he grew I discovered that he started have some kind of behaviour like hand flapping, hitting himself in the chest area, constant rocking side to side when standing. He tends to sing a lot,he enjoys music a lot, repeats words he hears, when frustrated or made he may try and bite or just scratch at anything closest ???? him.he screams lot when hungry cos he does doesn't communicate with anybody his feelings, I know when he ?? hungry, when wet cos he ?? still on diapers I tried ???? potty train him but I got frustrated ????? gave up so he ?? on diapers even till now. I have tried looking for school for him but there's none with both condition in nigeria, I need help ????? advice please on which school can admit him in †?? uk.this ?? M????????? email address parachbooks@yahoo.com. I need help for M????????? son. PLEASE HELP

Thanks


Re:Blind and Austistic Children



Hi, I have a son who was born blind he was diagnosed with retinoblastoma but as he grew I discovered that he started have some kind of behaviour like hand flapping, hitting himself in the chest area, constant rocking side to side when standing. He tends to sing a lot,he enjoys music a lot, repeats words he hears, when frustrated or made he may try and bite or just scratch at anything closest ???? him.he screams lot when hungry cos he does doesn't communicate with anybody his feelings, I know when he ?? hungry, when wet cos he ?? still on diapers I tried ???? potty train him but I got frustrated ????? gave up so he ?? on diapers even till now. I have tried looking for school for him but there's none with both condition in nigeria, I need help ????? advice please on which school can admit him in †?? uk.this ?? M????????? email address parachbooks@yahoo.com. I need help for M????????? son. PLEASE HELP

Thanks


Re:Blind and Austistic Children



Here are some good articles on this subject. Here is the link

http://www.tsbvi.edu/component/content/article/171...


Re:Blind and Austistic Children



Hello, I just did a search re: autism and blindness and saw this discussion. I am a psychologist and former TVI (have some things on the Texas School for the Blind website along with my colleague Lorraine Rocissano). I am sorry for the frustration that many of you describe. You are also describing a range of levels of functioning with your children; and the challenges of the TVI not knowing about autism and the autism specialists relying on visual supports. WELL, if the autism specialists substituted 'concrete, tangible' for visual supports; and if folks looked at some of the strategies used with children who are deaf/blind (e.g., see the www.tsbvi.edu postings on calendars, routines, feeling groovy, etc.) that might help. I am trying to bring the need to identify children early to the attention of the CDC. I am assuming that you are aware of the conference call support sponsored by AFB for parents of children with autism and visual impairment ... that might provide some tips.

Respectfully,
Terese
Terese Pawletko, Ph.D.


Re: Blind and Austistic Children



Hi, am looking to talk to anyone from Charlotte NC. We will be moving from Ireland to Charlotte in the next few months.I really need infomation on schools and services for my 12 year old son who has optic nerve hypoplasia and autism. please help


Re: Blind and Austistic Children



Forgot to put up my email address. annmariebradley@yahoo.com


Re: Blind and Austistic Children - Angry outburst



Hello, I am looking for some advice. My nephew is 15 years old and severely blind with autism. Over the last year, he has had some very strong outburst where he lashes out at us, almost every time causing one of us to bleed and get stitches. Everyone tells me to call the cops on him, but I can't. He doesn't mean too hurt us. We have taking him to a Phsyward and they put him on medication that last for a few weeks. Then we are right back where we started at. Last night was another bad incident. He is 6'2 and 230 lbs and is just too big for us to handle anymore. We have applied for state assistance to get help on finding him an in-home care, but that was over a year in and half ago and we are still waiting. They just keep saying there are no open spots at this time. Does anyone have any advice they can give me? My sister is at a loss for words and the anger is getting so bad with him, that his siblings are now scared to go home at times. Due to his age, the hospitals only take him for a few days, then he comes back home. Any help would be great. My email is Jenny@martingroupllc.com. We live in Seattle WA as well.


Re: Blind and Austistic Children



Hi everyone,

I'm here seeking help from you all since you all have some experience and might guide me through the right direction

I'm from Saudi Arabia and we have decided to take my 6 years old nephew to USA as they might have some good school to improve his skills since his situation is very uncommon.

My nephew is blind and has significant cognitive delay with sever linguistic and social impairments as well. There have been autistic like features, but this is uncommon in blind children according to the doctors and specialist here in Saudi. I know some of you mention similar situation to their kids in here so you might be able to help.

His situation more like Holly's son that mentioned in this page.

He basically (Blind, Autistic, have cognitive delay and sever linguistic) and he never spoke a word that makes sense and he always repeats few words that has been created by himself

His parents are planning to travel soon to the US and I have contacted many school and most of them will not be able to help since is very uncommon for a child like that.

We are currently looking for the best school to serve him the best and improve his general skills. We have no issue where the place is in US.

Here is my email address: aalghafl@gmail.com

I'm looking forward to hear your feedback,
Your help is highly appreciated,
A big thanks to you all the way from Saudi,
Ali


Re: Blind and Austistic Children



I want to share a few resources available to you on the AFB FamilyConnect website:
http://www.familyconnect.org
This program has several features including content by age range, message boards by eye condition as well as one devoted to Autism and much more: http://www.familyconnect.org/messageboards.aspx?MB...

In particular I want to let you know about Emily?s blog about her son Eddie who has both autism and blindness. It is called ?Raising A Child Who is Blind and?.? http://www.familyconnect.org/blog.aspx?BlogID=5

You may sign up for free and use the track option to get automatic emails when new blogs, your message board and announcements. It is also a good way to locate other families to learn and share with each other.


Re: Blind and Austistic Children



I have a son who was born preemie &has had a visual impairment &speech delay. He is now 7 yrs old since around 6mos he went to rehab for OT &PT &also ECI(early childhood intervention)till he turned 4old enough to start school he has been improving in school with following normal routines. His visual impairment therapist comes from 1/1&2 hrs 3times a week to focus on him during school. Thank god for awesome people like her ..we have been blessed to have her& other help in our lives searching for answers. We recently had a conference @school ARD meeting with all the teachers who he'll during his day. So now he has been diagnosed with being in the autism spectrum. Although he does communicate with some talking he mostly repeats your questions&gets frustrated whn he is not understood. Recently he has been wanting to do everything for his self like pouring a bowl of cereal. He does see an ophthalmologist every 6mos &has had different changes in his vision improving but he really has no problem doings normal routines love my son But we jst looking for more info on wat parents are having problems with sitting on the potty..he goes number 1but he won't sit on the toilet &has accidents looking for a pediatrician that can help that has worked with children with visual impairment&speech loss.


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