Question for you!
Posted by Kellibug on 8/20/2008 at 3:06 PM
Hello all ~
I am the Mother of a 17 yr old girl, who's been diagnoised with Optic Disc Drusen. What's been odd is that she's not lost her periphrial (spelled that wrong!) but her central vision. . .
Anyone out there have any idea on how many people really lose their eyesight from this, or at what age?
Thank you all ~
There are currently 3 replies
Re:Question for you!Posted by struax on 9/9/2008 at 4:36 PM
I would like to encourage you to visit the AFB website designed with the parent organization NAPVI. FamilyConnect.org has a lot of information including message boards, articles, video and more. I searched for optic nerve drusen and found a message board string on the subject from adults with the eye condition. Your post is there as well. Again, please visit WWW.FamilyConnect.org
Re:Question for you!Posted by Kellibug on 9/19/2008 at 2:21 PM
Re:Question for you!Posted by 2seeblueskies on 1/22/2009 at 10:09 PM
I actually have the same question - I was just diagnosed with Optic Nerve Drusen and I am 51 years old. Are the effects different for each person? Do you only lose peripheral vision? Can you lose your sight from this? Looking for answers.
Pam, Oakley, CA
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