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AFBAmerican Foundation®
for the Blind

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advice, please

Hi! I'm new to the boards, and I was just wondering if any of you could give me some advice...
Well, when I was three my retina in my left eye detached, and I've been blind in that eye ever since. In my right eye I'm legally blind, and over the years my vision has gotten worse.
The problem is that I am at a high risk for getting a retinal tear/detachment in my right eye. So, I'm not really sure what to do activity-wise. In gym, we used to play dodgeball a lot and I couldn't play. (My mom wrote a note explaining why I couldn't play becuse I might get hit in the eye with a ball.) Well that just made me feel more like an outsider sitting on the bleachers while everyone else played. Also, I would walk down the halls at school and get run into by someone and they would get mad at me. I mean I couldn't see them coming, but they didn't know that.
So I was just wondering if there were any sports that you guys know of that don't involve a lot of rigorus activity (for example, I can't mountain bike because of all the jarring movements).
Also, my left eye has turned blue (the iris, I mean), while my other eye is brown. It's noticeable, but I have a contact that I can wear, but it's pretty uncomfortable. I could have the eye removed, but then I'd feel so bad about myself. And, if they ever come up with retina transplants, I wouldn't have an eye to put it in.
It's really great to have such a great community like this. I personally, have never met another visually disabled or blind person, and I think it would be great to meet some of you. I mean, my family says they understand, but they can't really, because they've never gone through it.
I look foward to talking to some of you! :)
Megan

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Now I can't get a guide dog because of my depression.


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I went to the amusement park and had so much fun. My mom chickened out on Goliath.


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I went to the carnival last night and had the best time *rer.


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before i had mentioned the sports education camps for visually impaired athletes. the specific one at western michigan university is run by paul ponchillia who has written books on the subject. if you search his name on google you will find more information about his books. thanks again tiffany


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hi megan i am 19 and also have retinal detatchment. as far as socializing there is a great camp i have been going to and now working at since i was nine it is in greenbille michigan it is called camp tuhsmeheta it is a summer camp just for visually impaired children and teens. there are all different themed weeks the site is campt.org and as far as sports there is a sports camp i have attended for a few years at western michigan university in kalamazoo michigan and they have them all over the country. they are sports education camps and they are once again just for visually impaired people. and another site is usaba.org which is the united states association of blind athletes. i myself have done track and field as well as goalball, swimming, tandom biking, bowling, wrestling, and judo. all of these are offered at the sports education camps i mentioned. i have also done rock climbing and white water rafting. you could also try yoga and things like that. if you have any other questions i would be happy to answer them. hope this helps tiffany


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That's cool sarah


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Guess what. I'm going to a huge carnival tomorrow n/ght! And I'm going to Six Flags on Thursday!


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She is supposed to be, but since Ilive with my aunt and my uncle now, they think that they're my parents. But it is all good, because I'n not in trouble, my uncle said he was proud of me for telling the truth.


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Isn't your mom in charge of you and your restrictions?


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That is great to know! I am scared right now. My uncle is thinking of putting me on restriction just because I stayed home from school today, I didn't feel good because of my depression pills. So now I'm in trouble.


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No one said you had to.


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I don't get it. Why would I have to stop riding rough wooden coasters now if I have been riding them my whole life?


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And mimi hits a grand slam out of the park!


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I'm sure all types of blindness are hard, it's how you deal that is the important part.


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I'm glad I don't have glaucoma. It must be hard.


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Megan, I have congenital glaucoma from my dad. He's the only other one in the family and he got it around the age of 10.


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No way! I won't avoid even wooden ones! I go on wooden coasters all the time. I have even been on Ghostrider! That is the roughest wooden coaster ever!


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Aiming, I have congenital glaucoma, what about you?
My grandfather is the only person I know with glaucoma, and his was brought on by age, he wasn't born with it like me.


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Hmm I guess I gotta jump in now, hahahaha. I have three conditions, mostly genetic. I have LcA, and two others that I cannot spell but they do affect my eyes by making them very painful and almost unbearable. The other condition makes my eyes move uncontrollably, although when most people see me they can't always tell till they look for a while.
so yes, we all have our stories, . I don't know too many blind people, partly because some of the girls i've met in person don't really like me because of my independent attitude and because I'm so outgoing. Aiming can vouch for me, I'm not that bad am i? lol Oh well.
Don't worry about the coasters girls. just listen to your doctor's advice and keep enjoying life.
Mimi


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Sarah, I concure with Megan, you don't have to stay away from all roller coasters, just some could be pontentially negative, but you never know until you try. I've been on some heavy duty roller coasters and nothing has happened.


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its nice to meet people who understand a certain condition. Where I live there's not many people with glacuoma and know how it is so its always nice to meet other people.
Is your glaucoma congenital or did you just get it?


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Sarah, I don't think you'll have to avoid all big roller coasters, just some of the really jarring ones. My doctor told me to stay away from the wooden ones, because they are really shaky, and can trigger a detachment. Otherwise, I'm free to ride most others. (Although I'm kind of afraid to ride the really big ones, haha).


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Thanks, aiming! I have glaucoma also. Although, I'm not taking gym this year, I have to take it next year. They have made exceptions for people who do school sports. The only one I could do is swimming, so I'll try it out! It's nice to know people my age (or around my age) who understand. Thanks again!
Megan


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Oh no! That is horrible. Do you think that I will have to avoid roller coasters because of my detached retinas???? In my PE class, I just sit there all period.


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Hi Megan,
I go by aiming on here.
I'm totally blind (ok some light can be seen), and legally blind in the other eye. My retina detached when I was in the seventh grade, and after that it really limited my involvement in sports and such. I did do the normal sports at school when I was young, but after my retina detached and as I got older my parents and the schools shied away from letting me. They had the same fear that a ball would hit me in the head and do some damage not only because of the detached retina but because of my main condition, glaucoma. For PE, they just had me walk and lift weights which if you ask me was BORING! I felt really alone and left out of things and it was really hard for me for a long time. I know how it feels.
Have you tried walking, hiking, swiming, yoga, weights, running or stuff like that?
I know for my parents and the doctors there has been a fear of large roller coasters because the doctors told me that it could trig my retina to detach again because of the movement. That was soon after ward, I don't know about today. I'm 24.
This is a pretty nice place to hang out and talk with people and feel connected to people who understand. Welcome.

Aiming


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Hi Megan,
I go by aiming on here.
I'm totally blind (ok some light can be seen), and legally blind in the other eye. My retina detached when I was in the seventh grade, and after that it really limited my involvement in sports and such. I did do the normal sports at school when I was young, but after my retina detached and as I got older my parents and the schools shied away from letting me. They had the same fear that a ball would hit me in the head and do some damage not only because of the detached retina but because of my main condition, glaucoma. For PE, they just had me walk and lift weights which if you ask me was BORING! I felt really alone and left out of things and it was really hard for me for a long time. I know how it feels.
Have you tried walking, hiking, swiming, yoga, weights, running or stuff like that?
I know for my parents and the doctors there has been a fear of large roller coasters because the doctors told me that it could trig my retina to detach again because of the movement. That was soon after ward, I don't know about today. I'm 24.
This is a pretty nice place to hang out and talk with people and feel connected to people who understand. Welcome.

Aiming


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I'm glad to see you girls connecting, if I'd have known about this site when i was your age I would've been very entertained. :)
Mimi


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That is awesome! I love animals, and I've always wanted a horse. I hope you can get a guide dog soon. I like fairs and amusement parks (I just don't like the really big roller coasters.) I prefer the smaller ones, LOL.
Megan


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I have 3 dogs, 2 cats, and a bird. And we have 4 horses all together. I love to go to amusement parks, carnivals, and fairs. I have been blind since birth. I am trying to get a guide dog soon.


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Thanks so much Sarah and Mimi!
I guess I never really thought of yoga, sounds fun, though. And I love to hike, though there aren't that many places to hike near where I live. I'll find out if there's a support center near me.
And Sarah, I'm 16, too!
Lets see, for fun I like to play guitar, sing, and have fun with my dog, basically just taking him for walks and such. I have a cat, too but he doesn't like playing very much, LOL.
And I've never been bungee jumping before. I'd love to do it though, if I ever get up the courage!
Megan


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Megan, what do you like to do for fun?


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Hello and welcome Megan:
I go by Mimi on this site and I've been blind since birth. i'm 22 and a university student. This site is great for support and to get your questions answered. I kinda like to be the big sister and chat with everyone since I am not a teen but there is no young adult board here.
as far as sports, have you tried swimming, hiking, yoga, track and field, jazercise, bowling, aerobics, and if need be, you can contact your nearest blind and visually impaired support center and ask them too. They usually are very helpful at these sort of things.
i hope we see more of you on the posts.
i hope I was helpful.
Mimi


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Hello, Megay! My name is Sarah, I am 16 years old. I am legally blind. I have detached retinas in both eyes. As for sports, I have this very same problem. In gym class at my high school, I can't do anything in there, because they only play basketball and footblall, and I'm scared of the ball hitting me. People are kind of rude to me at school. For sports, a good idea would be bungee jumping. I have done this before and it was wonderful. And the best part is you don't have to see to do it. But it depends on how brave you are. How old are you? I would love to become your friend. I don't even have a social life. My only friends are on this site. I have made a lot of friends since I joined this site. Have a great day!


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