Posted by Randal on 4/7/2010 at 8:45 PM
Hi my name is Randal I resently found out that I have R.P. (Retinitis Pigmentosa) a disease and I only have >30 degrees field so I hope I can make some friends here! :)
There are currently 26 replies
Re:Hi.Posted by msk5 on 4/7/2010 at 10:36 PM
hey there! my name is jillian and i have ROP (retinopathy of prematurity) blind in left eye and visiually impaired in the right with some new found lightingproblems. i wouldl love to be your friend! :)
Re:Hi.Posted by Music fan24 on 4/8/2010 at 12:30 AM
hello, nice to meet you my name is paulina i also have R.O.P so i can understand a little where your coming from but the other condition i am knot sure about if you have questions or just someone to talk with i will be here as well as others
Re:Hi.Posted by Randal on 4/8/2010 at 8:27 AM
Thank you very much and I would love to be your friend.
Re:Hi.Posted by windows7 home premium on 4/8/2010 at 3:04 PM
Hi my name is Elizabeeth and I have leabers. I am totally blind so if you want to talk to me, you are more than welcome to do so.
Re:Hi.Posted by beccawhizkid on 4/8/2010 at 4:56 PM
Hello my name is Rebecca and I have a rare visual disorder that gives me light and color dependent vision so I am legally blind. welcome :)
Re:Hi.Posted by Bob452 on 4/8/2010 at 5:43 PM
Hi, to all,
I also have RP, and would like to make some friends, blind or sighted, it doesn't really matter. Just having a pen-pal or two would be nice. I am from California. Who here is also from California?
Re:Hi.Posted by windows7 home premium on 4/8/2010 at 6:35 PM
Re:Hi.Posted by Music fan24 on 4/8/2010 at 7:39 PM
hello, all this is awsome we have more people on here!
welcome new comers my name is paulina i have ROP as well and i am also from california nice to meet you guys and hello to my friends on here
Re:Hi.Posted by Bob452 on 4/8/2010 at 9:18 PM
yea! Give it up for the Californians up in here.
What is your instant messaging screen name?
Re:Hi.Posted by Music fan24 on 4/8/2010 at 9:34 PM
hahahaha yeah i agree
i don't have i m ust myspace, skipe, and blinknation
what are you interested in?
Re:Hi.Posted by Bob452 on 4/9/2010 at 3:11 PM
I am a little confused regarding your previous post. Did you mean to say that you don't have IM but use MySpace, Skype, and BlinkNation? Sorry, I'm cute, not smart. lol!
I am sure that Skype does instant messaging too.
Re:Hi.Posted by Bob452 on 4/9/2010 at 3:34 PM
As for your question of what I am interested in. Well, I am
interested in a lot of things. Mostly, I have a love of literature
and enjoy audiobooks. I am also great with computers, but
enjoy technology mostly because it connects people from all
over the world. I'd like to tell you more about my other
interests, perhaps later, but I think that will do for now; I don't
want to take up too much time talking about myself. It's such
a familiar tale. Instead, what of you, where do your interests
Re:Hi.Posted by Music fan24 on 4/9/2010 at 6:08 PM
o sorry about the comfusion didn't mean to do that but what you listed was correct and i don't know how to use skipe that much
i have different interests i like technology such as computers, cell phones, and more i also reading mystery, syfy, and other books like that
what do you like to do for fun?
Re:Hi.Posted by windows7 home premium on 4/9/2010 at 6:33 PM
I am glad that that new laptop you got is working out great for you.
Re:Hi.Posted by Thrill Monster on 4/9/2010 at 7:48 PM
Hello to all new users! My name is Sarah, I have Rop, I'm 17 and from California as well as Paulina. I'm from Southern California. My interests are roller coasters, animals, technology, books, bungee jumping, and swimming.
Re:Hi.Posted by Music fan24 on 4/10/2010 at 3:34 PM
hello, to all! hope you all are have a good saturday
and i wanted to thank the person who sadi they were glad the laptop is working out thanks
Re:Hi.Posted by Thrill Monster on 4/12/2010 at 6:35 PM
I hope everyone had a great weekend. I sure did!
Re:Hi.Posted by blindsean on 4/16/2010 at 12:55 AM
Hey, I have RP. I'm 17, and recently I have been feeling depressed. Is there anyone out there that ever feels like this too? Thx
Re:Hi.Posted by Joe S on 4/16/2010 at 9:07 AM
I think you will hear from the others, that a lot of people get feelings like that. Pretty natural when coping with something as big as a visual impairment. The adjustment process is a cycle and it is natural to have ups and downs, they just become less frequent. Things can cause those downer moments.
The thing that really can change is your outlook and the realization that there is a lot worse things then being visually impaired. By worse, I mean tougher to overcome or deal with. The better your skills become and the more comfortable with dealing with situations; the less often those downer moments will happen. Teenage years are tough because you (and all teens with or without visual impairments) are facing struggles with finding your path or place. Life can be very tough and we all have obstacles and barriers to overcome. Some have more then others.
The adjustment process can be very tough and it is good to have someone to talk to that will not judge you. Counseling can be a great help. I know it helped me to realize somethings when I was dealing with a tough time.
Peer support groups can be great as well, talking to over visually impaired persons who are dealing or have dealt with similar issues. Meeting successful persons with VI who have overcome can be a great influence. Mentors are a great use for this, to know that you can overcome. AFB CareerConnect has mentors you can contact, check it out.
Your peers on here can be a great help as well! They discuss issues such as this. See what they have to say.
I have RP as well. Just know that you can overcome and succeed! I know you can!
Re:Hi.Posted by Thrill Monster on 4/18/2010 at 4:43 PM
I suffer from depression. I have anxiety disorder.
Re:Hi.Posted by mihai on 5/18/2010 at 4:18 AM
For more then 10 years I am blind but I can only say that I have a normal happy life.
I hope you all find a way somehow.
Re:Hi.Posted by boyrule.rockcool on 5/28/2010 at 1:46 PM
hi my name is NIVEDITA (last name deleted for users protection) from india(gurgoan) .
I ' m not visually challened person but in this holidays my science teacher gave a homework that is frinendship with a blind person and ask how they read and write and also how they recogonize currency , notes , objects etc ? So plzzzzzzzz help me!!!!!! its urgent!!!!!!! i need it by day after tomorrow. thku u guys and gals are very nice !!! and i ' m very grateful to u.
Re:Hi.Posted by boyrule.rockcool on 5/28/2010 at 1:51 PM
I ' m sorry that i did not mention my age that is 13. this is the continuation of post 22
Re:Hi.Posted by Joe S on 5/28/2010 at 4:40 PM
Very cool assignment, I know you will get some good responses from the teens on this message board. I will weigh in as well.
I work for the American Foundation for the Blind. People who are blind or visually impaired use many methods to do those things.
Reading: A person could know how to read braille and utilize that to read through embossed paper. Embossed would be like printing (imprinting or pressing). So, a person could read braille. They also could read braille from what is called a refreshable braille screen. This is an electronic device where needles create braille and refresh as you scroll progress on computer or PDA type device. A person could access books electronically through talking books (recorded speech) or electronically through electronic text that is processed into speech through multiple methods. This can be done on a computer or on a hand held device. A large amount of persons who are visually impaired can read print if it is enlarged or magnified, but this causes a slower reading speed. Print on paper can be scanned into a computer and read through the computer. There are even cell phones that can scan print typed pieces of paper such as menus and read it to a person with in 15 seconds or so. This is called the Kurzwell NFB Reader. You will see this soon on the iphone most likely. They have already been testing Apps that try to do this on it.
Computers: can be accessed using a screen reading software such as JAWS or Window Eyes. These programs read what is on the computer screen. Refreshable braille screens being attached to a computer in addition to a key board or anything else.
Access to cash money: Identifying money can be done by using a device that scans the bills (paper money) to find out what it is, it reads the money and speaks it out. These are not exactly accurate yet, but have made great strides. They have some in cell phones, but they are not all that accurate yet. Again, some person have enough vision to read what the money is and might fold the money in specific ways to differentiate it in their wallet. There are many methods for doing so. Often a person asks as it is handed to them which means they or we have to be pretty trusting and should double check this.
I hope this helps and I wish you the best on this holiday weekend!!!
This sounds like a really cool assignment.
Joe S. (I am visually impaired or blind)
Re:Hi.Posted by boyrule.rockcool on 5/29/2010 at 1:23 AM
thx joe s. this really helped a lot
once again thx
Re: Hi.Posted by Thrill Monster on 11/26/2012 at 8:14 PM
How was the assignment?
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