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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

not a nerve problem..

hello guys, since wednesday i've been up in portland. things got so bad that my parents couldn't take it so they drove me to an er in portland. they got an eye specialist in to see me, who pulled some strings to get me in to see a very good doctor at the casey eye clinic. on friday i went over there and after an examination of both eyes he decided that it's not neurological. i'm going back tomorrow and the first surgery is scheduled for tuesday. the reason i'm saying all ohf this is because i have good light perception in my right eye. i'm not sure what it's like not even to see light. when my retina detached i still had a little light perception. are any of you 100% blind? or have lost your vission like i'm going to? some knollege would be helpfull.

AlanaChlorine

There are currently 16 replies


Re:not a nerve problem..



Hi it's Elizabeth. I am blind in both of my eyes, totally. I do not have any light perception, and I have been blind scence I was born. I will never see anything in my lifetime. My retenas are scaredso much, that I cannot see. I have a dazes called Leabers Congenital Ammerosis.


Re:not a nerve problem..



how do you travel? i always have relied on my little bit of vission to get around. if i was walking down a hall4ay i could sometimes see a doorway by the difference in light for example. actually, before my retina detached i had enough vission to read text messages with a cctv.


Re:not a nerve problem..



I have never been totally blind. I'm totally blind in my right eye. I can see colors, light and shadows with my left eye. I hope your surgery goes well. Best of luck!


Re:not a nerve problem..



I'm sorry to hear this. I'm completely blind as well and have been my whole life.


Re:not a nerve problem..



i'm leaving for the hospital in portland today at ten and the first procedure is tomorrow. it's the eye without any vission but they're injecting chlorpromozine behind the other eye because it injurs and sometimes deadens the area behind the eye as well as the back of the eye itself where the nerves connect. it can cause temperary relief, but is more likely just to cause perminant scaring and near or completely total blindness. in the end, even after just one injection, the eye won't be savable. the good news (or bad) is that i'm doing better then my parents are. they're doing backflips with tears coming from their ears they're so freaked. i could still use any insite about how to do things without any sight at all.

AlanaChlorine


Re:not a nerve problem..



so what exactly are they going to do you? is the surgery gonna fix your pain but cause total blindness??
i hope it works for you and that the pain will go away :)


Re:not a nerve problem..



We will be rooting for you!

Sincerely,
Joe S.
AFB Staff


Re:not a nerve problem..



How did the surgery go?


Re:not a nerve problem..



the surgery is enucleation, which in laimans terms means removal of the eye. the first one went really well, the doctor said that my eye was too big for the socket and unusually stretched out. oxycodone takes care of all the pain on that side. narcotics didn't work for the eye pain so yes, i know it worked. the final one is in a month, i'm a little more nervous, but the chlorpromozine knocked out most of the remander of my vission anyways. the most anoying thing right now is the eyelid being stitched closed. if anyone wants to hear me go medical nerd, just ask about the procedure.

AlanaChlorine

PS, i'm glad i'm not a spider, or i'd have seven eyes to go instead of just 1.


Re:not a nerve problem..



wow so like are you going to learn braille? since soon both of ur eyes will be gone (am i understanding that right? you just had one removed, and soon you will have the other removed?) do you already know braille? and things like that to live with absolutly no vision?
sorry im just curiuos! im glad ur surgery went really well!!


Re:not a nerve problem..



i never had enough sitht to use anything but braille. ya, the final procedure is in a month, but my vission is pretty much dead so i'm not losing much.

AlanaChlorine


Re:not a nerve problem..



I hope that surgery goes well too.


Re:not a nerve problem..



I'm sure that it will, i have one of the best doctors anywhere near here.


Re:not a nerve problem..



Keep your head up (as you are already), a positive attitude goes a long way.

We are rooting for you and here for you!

Sincerely,
Joe S.
AFB Staff


Re:not a nerve problem..



i wish you the best of luck


Re:not a nerve problem..



I hope everything goes perfect.


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