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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Hello, I'm new here.

Hi, my name is Austin, and I live in Florida. I'm not blind myself, nor do I know anyone who is visually impaired. I do wear glasses, but that doesn't count for much. lol I would love to meet visually impaired people around here!

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Re: Hello, I'm new here.



Hey Guys,
I have rop as well. I was 23 weeks premature and I wasn't supposed to live. If anyone has any questions for me feel free to ask. I don't mind.


Re: Hello, I'm new here.



That's for sure.

Sarah and Wizard


Re: Hello, I'm new here.



Happy Easter to you all.
My name is Devin. I am from Alabama. I believe I have ROP, but not exactly sure. I do know as fact that I was born prematurely, at one pound, six ounces. I haven't been on here much, because I forgot my username and password, but I got it today so now I'm catching up on what people have been talking about here. There doesn't seem to be much going on in this board.


Re:Hello, I'm new here.



hello Austin.

I'm Nat. I am not blind nor visually impaired myself but I do wear glasses too. I came here to connect with blind and visually impaired people as well when I was new here. But I hope we can still talk and be friends! It is nice to meet you.


Re:Hello, I'm new here.



Hey, whats up Austin?
My name is Ethan Kockelman I am 19 years old and graduated from Canby High School in Canby, Mn. I am now going to college at Minnesota West for Liberal Arts degree. I have retinitis pigmentosa. My vision started decreasing at age 14. and is now at severe tunnel vision and no night vision.


Re:Hello, I'm new here.



How premature wer you? I 4as 3 months premature at 1 pound 4 ounces.


Re:Hello, I'm new here.



Mike,

Welcome to AFB's TeenConnect message board.

I know there is a great group here and I hope you have a pleasant experience.

You have ROP (retinopathy of prematurity)? We have a few people on here that have that as well. I have RP, retinitis pigmentosa.

Enjoy you summer -- it has been flying by for me.

Sincerely,
Joe S.
AFB Staff


Re:Hello, I'm new here.



Hey, Austin! Nice to meet you, i'm Michael (Mike)! I am visually impaired myself and I was born premature, so that's why I am. I am new here as well, so I thought to read your post. I hope you're having a great summer so far :)
-Mike :D


Re:Hello, I'm new here.



You will make tons of new friends here.


Re:Hello, I'm new here.



Welcome to TeenConnect.

I have had a number of students with that condition. I hope you enjoy getting to know everyone on here. The group is pretty welcoming. They share ideas, thoughts, and issues they deal with.

Thank you for joining!

Sincerely,
Joe S.
AFB Staff


Re:Hello, I'm new here.



Most people get it at birth or in the first few months of life. cense it's congenital, it's caused by a defect in a gene. It's really rare and I've heard it's more common in boys than girls, but I don't know if that's true. I can see a little bit of light but not much and I can't see shadows. I think Some people with lebers can see shadows, but I have cataracts so I can't.


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I've never heard of that condition. Any symptoms?


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Hi! My name is Gabriella, I am 15 and I am new here to. I have Lebers Congenital Amourosis.


Re:Hello, I'm new here.



Florida is amazing! You should go on vacation there.


Re:Hello, I'm new here.



Hello, Austin my name is Paulina, I am 17 and will be 18 in a month. I also have Ritnopothy Of Prematureaty and no its knot uncomfortable I can see lights and shadows no shapes or colors though its knot much but it still works for me.

I have sighted friends and I basicly grew up around sighted people, I love ti listen to music, watch tv, hang with friends, and more. I live in Cali as well and I would love to visit F.L.

Nice to meet you


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Interesting. I have very sensitive hearing, am very sensitive to touch, and am a very picky eater. Since I was born too early my gag reflexes are way too sensitive.


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Sarah: No i don't, i do have mild hearing loss as well but thats not connected the ROP.


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Hi Austin. My name is Davion. I have retinoblastoma. But itss nice to meet you.


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Annalee, do you have symptoms with your ROP? Doctors say some of my mental issues contribute to ROP.


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I hope you get to see it in theaters it's awesome


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I have been wanting to see the green lantern!! It sounds good!
Austin: so you are in college? I'm a junior in high school. And, ROP isn't thaaat bad. I honestly think it's been harder for my parents than me haha.


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cool
i'm kind of curious about Tommy Lee Jones's role in it


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yes, I definitely am! lol I think I'll be seeing it with my dad and my bro. We always go see these kinds of movies together. :)


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Ryan Reynolds never ceases to amaze.

Are you planning to see the Captain America movie?


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Yes, it was perhaps one of the best movies I have ever seen. lol Absolutely incredible!


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I love all those movies too . The green lantern was awesome


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Hello Annalee, Lindsay and Joe! Thanks for replying and for the happy 4th of july weekend wishes. :) Annalee, I'm sorry to hear that, I read about it online and it seems like it would be pretty uncomfortable to live with. Joe, I didnt know that, thank you. And Lindsay, I like to read and write just about anything(except for college papers that is), and well, I don't know about a favorite movie, per se, but I love a fair few. Ferris Bueller's Day Off, I am Legend, Green Lantern, Back to the Future, Im good for about any movie you can think of. lol


Re:Hello, I'm new here.



Hey Austin,
My Name is Lindsay, i'm 17 and have optic neuropathy.
I'm from North Carolina.

What do you like to do?
Do you have a favorite movie?


Happy Independence day to you too Joe


Re:Hello, I'm new here.



Hello Austin!

I am Joe and I am staff at AFB. You could meet persons your age who are visually impaired in your local schools or even through your local community rehabilitation provider. All depends where in Florida you are -- there is a lighthouses and such in Tampa, St. Pete, Tallahassee, Miami, Ft. Lauderdale, West Palm, Orlando, and other areas might have a different name such as in Jacksonville, Pensacola, Daytona, and others.
But, this is a great place to meet some great teens with visual impairments. We have a great group here that share and advise each other.

I hope you find what you are looking for! I wis you the best! And, everyone, have a great 4th of July weekend!!!!!

Sincerely,
Joe S.
AFB Staff


Re:Hello, I'm new here.



Hey Austin! My name is Annalee, and i have Retinopathy of Prematurity. I am from California.


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