Posted by zumer7 on 7/12/2012 at 3:28 AM
I haven't posted on here in forever.
I graduated highschool last month and two weeks out I started working five days a week at the chamber of commerce. I enjoy having something to do, it's incredible what people will do when they have too much time on their hands. I have been planning on attending college locally for a while now, and I am set to start the 24th of august. However, ever since october of last year I have been experiencing slow but progressive vision loss. I was a braille reader before, but I was always able to get around without the use of a cane or sighted guide or a dog. Now I am to the point where I feel uncomfortable leaving the house without it belted to my side. I have an appointment scheduled for three weeks from now, and I am thinking the cause of the sudden decrease in vission is due to my cateracts worsening. Something that has been happening my entire life as I was born with them, but never noticeable for some reason until about a year ago. I believe it is due to the process speeding up.
For technology I am currently using:
An HP pavillion DV7 laptop, running jaws for windows 13, Openbook 9, (with a pearl camera) and I have the latest version of office to get my day to day work completed.
iPhone 4s 32 gb from verizon and let me tell you, this thing is amazing! I litterally have the whole world in the palm of my hand!
I just wanted to update everybody, it's been over a year since I've posted anything.
There are currently 9 replies
Re: HeyPosted by Wingman on 7/12/2012 at 11:01 AM
Hi, i'm sorry about what's happening with your vision but, it's nice to hear from you. I feel the same way about my iphone. I've actually been able to make my teachers forget i was blind using it. I really like the Zoomreader app, the look around and the Ariadne GPS, as well as the Learning Ally app and the game papa sangre. The MedReminder app also being good especially with my absent minded view of time. Among many others, it's given me Independence that i wouldn't of ever gotten. There's a lot of apps i'm saving up for though
Re: HeyPosted by Thrill Monster on 7/12/2012 at 5:38 PM
Congratulations on starting college. I am sorry about your vision loss, that must be scary and sad.
Re: HeyPosted by Joe S on 7/13/2012 at 9:28 AM
I am sorry about your recent loss. I know that is hard, no matter how prepared you are. You can't really adjust totally to something you haven't experienced, so this is tough. Keep your head up, you seem to be ripping it up. What great tech assets and skills you seem to have, great! You seem to have a good attitude about it. I love my cane, it is such a great tool, as is a guide dog as well. I love my iPhone as well, such a great tool to have. It really does open up a new world of access within your pocket.
I have retinitis pigmentosa with a healthy dose of cataracts thrown in. The cataracts came on in the last two years. I know it can be hard, but you are rocking it! Keep your head up and keep those skills sharp. It is great to hear about the work you are doing. Congrats on starting school soon.
We are all here and friends.
Keep us posted!
Re: HeyPosted by tyler13 on 7/13/2012 at 9:49 AM
Hi. I am using an iPod to type this reply. I have enjoyed using it.
update two:Posted by zumer7 on 7/13/2012 at 2:39 PM
Thanks for all of the great support! I can't wallow in self pity, I need to take immediate action while the time is ripe, and that consists of doing what is necessary for me to attend college and get a proper education. I have decided to wait one or two semesters to attend college, and attend the idaho comission for the blind and visually impaired's assessment and training center in Boise starting on october first and spanning until december twenty-first. I have lost the capability of doing so many things, and even if I have cataract surgery before then I will need the time to redevelop and gain back the confidence I once had. It is the right choice, and it will also give me the time to let my eighteenth birthday pass without having to scramble to get into subsidized housing or any kind of housing at all.
I still haven't downloaded a gps ap on my phone, I should look into that. I thank each one of you for your kindness and support, it means a lot!
Joe: thank you, cataracts are a dragger! I would rather use a cane than a dog any day, I feel it would take away from my personal dependence.
Re: HeyPosted by Joe S on 7/14/2012 at 9:05 AM
I like your attitude, I actually taught O & M, employment skills, and some adjustment training at a training / rehab center. Sounds like a good plan, and I am pretty sure I know someone who works there, a friend of a friend. Yeah, you will never get that much in-depth training, unless going to a residential training center. It always good to improve and hone your skills. It is just about learning new strategies to accomplish tasks. You will rock it!
The cataracts aren't really bothering me, I feel pretty well prepared and it has been gradual -- I already have very little usable vision.
I wish you the best of luck and keep your head up! There are a lot of great resources out there, as you mentioned housing and much more. These are great services because they allow you the opportunity to get a new start. Allows you the opportunity to live independently well starting your life, work, and more.
Keep us posted!
Re: HeyPosted by Cool JC on 7/18/2012 at 2:51 PM
Hi there computers are fun. I use a dell with jaws 12 as well. iPhones are cool. I like the iPad my self but I don't need one yet i'm whaiting till it gets better for us. All iPads will have seary starting in the fall. I have retna opithy of preemachority. Great to hear from you. J.C.
Re: HeyPosted by Thrill Monster on 8/10/2012 at 10:49 PM
Hello, I have Retinopathy of Prematurity too.
Re: HeyPosted by country girl101 on 3/19/2013 at 3:10 PM
I have rop as well. The only remaining vision I have is light perception
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