can anyone relate?
Posted by horsegal2012 on 10/19/2012 at 1:46 PM
hey I was just looking for people around my age who could relate to me and thought this would be a good place to find some. I was born three months premature and that caused complications, I had fluid build up on my brain which damaged my optic nerve so they put in a shunt to drain the fluid, the damage caused my eyes to be crossed and so I had corrective surgery but it did not completely fix the crossing in my right eye but it helped some. I have good vision in my left eye and not much vision in my right eye causing me to have no depth perception so ball sports are a nightmare for me. However my doctor says that I could drive in the state of georgia (where I am from) but I am TERRIFIED!!! Also just so you know a little more about me I love to read and I love horses and I want to become a singer, my mom said that she is gonna try and get me voice lessons and I would like to be able to audition for X Factor
There are currently 11 replies
Re: can anyone relate?Posted by Thrill Monster on 10/21/2012 at 2:36 PM
My name is Sarah. I am 20 years old. I was born 3 months premature and have Retinopathy of Prematurity.
Re: can anyone relate?Posted by Wingman on 10/21/2012 at 4:09 PM
Hey, my name's Lindsay and I have optic nerve atrophy. I also had crossed eyes that were corrected at least cosmetically when I was barely a year old. I almost got my license but I felt it would be dangerous plus my vision was deteriorating so. I decided against it which has turned into a good decision cause its just gotten worse. I ended up just focusing on adapting since. I've always had a hard time with ball sports but I still liked them just got hurt a lot. My depth perception issues and night blindness has made working at woods of terror interesting but fun
Re: can anyone relate?Posted by Cool JC on 10/21/2012 at 5:04 PM
Hi there Sara I have the same eye kindition as you. I was born three munths preemy to. My name is J.C. Glad to meet you.
Re: can anyone relate?Posted by Devin Prater on 10/21/2012 at 5:19 PM
Hi. Well I have ROP too, but I have light perception, but I don't find it very useful.
Re: can anyone relate?Posted by Thrill Monster on 10/22/2012 at 3:57 PM
I have light perception and can see colors and shadows. I have some usable vision, but not very much.
Re: can anyone relate?Posted by abass on 10/22/2012 at 4:17 PM
Hi Sarah I am Amber. I have retinitis pigmantosa. I still have a decent amount of vision. I can still read print, I don't use Braille, and I loathe audio books. I also LOVE horses. I actually have a horse of my own. I was recently invovled in a horse riding accident. The doctors ended up finding something wrong with my top vertebra. They took that out and put in 2 rods, 4 screws, a cadaver bone, and a plate. So I am recovering from that right now. Enough about that. Right now I am working on a website for people who are blind and visually impaired. I also have two forums up and running. I can put up all of the links if anyone wants to check them out. I also want to educate the public about all the stuff that we can do. I really hope that I can start changing the definition of what society calls normal.
Re: can anyone relate?Posted by Joe S on 10/23/2012 at 8:59 AM
Welcome to the American Foundation for the Blind's TeenConnect message board. I think you will like the group here, they share their thoughts, questions, and try to support each other.
I have retinitis pigmentosa (RP) with a healthy dose of cataracts. I have 2 degrees of vision or so, like trying to look through a pin hole, but the cataracts make it look like broken glass -- if that makes sense.
I hope you enjoy interacting with the group. There are some great resouces on the American Foundation for the Blind's family of websites: CareerConnect, VisionAware, AFB.org, AccessWorld (free online technology magazine), and FamilyConnect. You can fiind these resources from www.afb.org.
All the best!
Re: can anyone relate?Posted by horsegal2012 on 10/23/2012 at 1:24 PM
thank you all so much for your responses and there are a lot of things that I struggle with physically and emotionally that I would love to share with you
Re: can anyone relate?Posted by Thrill Monster on 11/7/2012 at 2:29 PM
Hi Amber. i also have a horse of my own and 4 other horses. I have a guide dog too.
Sarah and Wizard
Re: can anyone relate?Posted by country girl101 on 3/19/2013 at 2:31 PM
My name is Abby.
I have rop as well. I just have light perception.
Re: can anyone relate?Posted by White cane on 3/30/2013 at 8:56 PM
awesome! I also have rop
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