Skip to Content

AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

just wanna chat, I have two children with optiv nerve hypoplasia

Hi my name is angela i have 3 children 2 who have optiv nerve hypoplasia(no sight). I would love to talk to other parents whose children have onh or are visually impaired. thank you


There are currently 10 replies

Sort Replies Oldest to Newest


Re:just wanna chat, I have two children with optiv nerve hypoplasia



Hello:
I need your help. I am a student in college who is currently studying to be a Teacher for the Visually Impaired. I am in the middle of a study, and I am required to chat with a parent of an elementary school child. I really could use your help.
Thanks,
Angel


Re:just wanna chat, I have two children with optiv nerve hypoplasia



Everyone...stemcellschina is doing treatment for ONH...check out the site!
Rochelle:)


Re:just wanna chat, I have two children with optiv nerve hypoplasia



i would love to talk to any other parents , who have children with onh.
you can e-mail me at
(connieb2315@yahoo.com)


Re:just wanna chat, I have two children with optiv nerve hypoplasia



MY NAME IS CONNIE AND I HAVE A 2 YR.OLD DAUGHTER WHO HAS ONH .
IM 18 AND ALL OF THIS IS NEW TO ME .SO MANY QUESTIONS ON MY MIND


Re:just wanna chat, I have two children with optiv nerve hypoplasia



I know you asked for parental responses, but I thought I could add some insight. I am 20 years old and have Optic Nerve Hypoplasia and can see but my vision is 20/50. If you have any questions, please feel free to e-mail me at emara996@gmail.com. I would love to help you if i can.


Re:just wanna chat, I have two children with optiv nerve hypoplasia



i just want to let you know my granddaughter is still doing well she is getting ready to move into the three year old class .the school is transitioning her slowly she was walking the other day and you usually have to let her know when to step down .. and she missed the step because I did not tell her in time to step down.. oh my '
God i was so afraid she had hurt her self bad she fell on the side walk because she did not see to step down that one step ..she still has ONH and I feel her vision is better but we are thinking of taking her to John Hopkins in North Carolina for another opinion or to see if there is anything new..


Re:just wanna chat, I have two children with optiv nerve hypoplasia



Hi there, I have a 5 year old little guy that has onh. He is very sweet and I have learned a lot from him and his vision impairment. He has light preception in his left eye and unsure of the exact acuity in his right eye. He has trouble with depth preception and is often scared of dark spots in the ground. He has development delays in he speech and fine/gross motor skills. We find he is rather moody and whiny.. Just wondering what all you know about onh and what a day in your life is like.


Re:just wanna chat, I have two children with optiv nerve hypoplasia



hello, my grandaughter is two years old and she has onh
she is very intelligent ..she loves to read ,she still has nystagmus and one of her eyes turn in. she does not like vegetables only meat and potatoes ,eggs and things like that .. which i am concerned about , because I know these children have certain food preference.. we thank God that she does not have any other disablilites she gets around in her daycare well and at home and outside she is very preceptive of things around her


Re:just wanna chat, I have two children with optiv nerve hypoplasia



I have 3 children and my 4 year old son has ONH. He too is completely blind. It is nice to find people out there that also deal with the same situations that I deal with day to day.


Re:just wanna chat, I have two children with optiv nerve hypoplasia



I have a son with ONH also.
We have a Visual Impairment Group at www.cafemom.com. There are several moms on there who have children with this or a similar condition.


Log in to Post a Reply