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for the Blind

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Mother of 17 Yr Old Young Lady w/Optic Disc Drusen ~ severe

Hello all ~
My question, to anyone out there that may know, is if anyone has any info on statistics of how many people actually lose their sight from ODD? Or at what age? What makes her case so odd is that she's 17, and her visual field is being affected in the center, not her perphrial vision.
We're being referred onto a Neuro-Opth.'ist, however, we will not see for a few weeks.
Any information at this point would be so very much appreciated!!!!!
Concerned Mom Kelli

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Re:Mother of 17 Yr Old Young Lady w/Optic Disc Drusen ~ severe



I did not receive a reply from you for my past posting
my daughter April is not 10 and has started losing her periferal vision and has a blind spot in each eye too.
I would love to have your email address to chat on line. There a no other kids in Australia with such a severe case as she has.


Re:Mother of 17 Yr Old Young Lady w/Optic Disc Drusen ~ severe



my daughter "April" was diagnosed at age 5.
she suffers from sever migraines after excess eye use like reading and writing at school. she is now 9; years old and is on blood presser meds for the pressure behind her eyes and sever headaches. she has no eye sight loss but her tests show a sever drusen in both eyes. i hate to think what she will be like at an adults age. please reply. do you get migraines


Re:Mother of 17 Yr Old Young Lady w/Optic Disc Drusen ~ severe



HI I TOO HAVE OPTIC DISC DRUSEN I WAS DIAGNOSED WITH IT WHEN I WAS 19 AND AM NOW 37 I HAVE NO PERIFERAL VISION LEFT JUST CENTRAL I WAS TOLD THEY CANT SAY IF I WILL LOOSE MY SIGHT OR NOT BUT I ALSO HAVE OTHER EYE CONDITIONS TOO CARACT SPOTS AND DRY EYE I SEE THE DOCTOR REGULAR EVERY SIX MONTHS AND ALL THEY CAN EVER TELL ME IS GO STRAIGHT BACK IF THERE IS ANY SUDDEN LOSS IN VISION .IT IS VERY WORRING TO A YOUNG WOMEN TO NOT KNOW WHAT TO EXPECT WITH THERE SIGHT OR LACK OF IT .PLEASE FEEL FREE TO EMAIL ME AT DIANEROBINSON06@AOL.COM IF I CAN BE OF ANY USE .


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