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12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

Hi everyone,

I have a wonderful daughter who was DX with ONH and the above at the age of 9mo. She is on cortef, synthroid, and growth hormone. She has a hard time in school but with the right support (learning lab) has found some success. This has effected her socially, as well as emotinally. She can be inappropriate at times (nose picking) ect. and she also has a very quick temper. She shows syptoms of OCD and has very hypersensitive hearing, which I feel contributes to her temper and frustration. She is on concertra which has helped some, and has been recently put on a anti-depressant. In spite of all this she is really a sweetheart. Anyone living with these issues. I could really use some advise now that we're entering the teen years.

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Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

try, good luck!

Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

hi my daughter is 11years old and she has panhypopitt. she has o many oher health problems but we have been blessed in o many ways she attends school and thank God we have neaver had anything but possative years at schoole everyone loves peyton and treat her with nothing but love and respect. so i think t hat the folks that are meen too thes children do not know what they are missing

Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

Hi, my name is Andrea and i'm 22 years old and i was diagnosed with panhypopituitarism when i was 3 months old. I can relate with having emotional issues, being stubborn and since i've gotten older I have noticed that I am also OCD. Please write me back. My email address is I am also very willing to become a penpal if she would like to talk to someone with panhypoptuitarism. When i was younger I took the same medication and now i'm taking dexamethason, levothyroxin, growth hormone, and birthcontrol. I am taller than both of my parents, i'm 5'9". Please write me back, I would love to talk to you and possibly your daughter.

Andrea Schatz

Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

Hello, my name is Sarah. I am 16 years old. I was bor with retina detachments in both eyes. I When I was born, I weight 1 pound, 4 ounces. I have a lot of emotional issues. I have depression. I was on medication, but it gave me too many side effects. Yu should be very careful with depression pills. I tried lots of them and they all gave me negatiur effects such as suicidal thoughts, loss of apetite, stomach pain, drowsiness, and constipation. I could barely get up in the mornings because I felt too sick. I have a lot of extreme trouble in school. I sit at my desk all day and sleep in every class. I have no friends either. It is very hard being blind and having emotional problems.

Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

Hi. My name is Julie. I also have a 12 yo daughter who was diagnosed when she was 6 with a brain tumor. she also is on many meds and her symptoms sound exactly like your daughters. She is not mature at all and doesn't do her growth hormone shots regularly so she is not growing like she should be. She gets picked on in school and is a special class now. She is also a twin which I feel makes the situation worse. she is also on concerta due to the tumor she has ADD. Life for me sometimes is overbearing with her and feel myself getting so frustrated when she acts like a 5 yo. any advice from you would be so helpful. I am a single mom of 4 daughters... hope to hear back from you soon. please send your response to my email.
thank you and good luck.

Re:12y.o. daughter with ONH, Panhypopituitarism, and emotional issues

In regards to sensitive hearing: sound can be, for some children with sensory issues, very very painful. I would strongly consider getting custom fitted ear plugs. Not only are they very comfortable, but she could wear them most anywhere. They are not at all like grocery-store foam plugs- they can be customized to filter just a little sound, allowing her to hear even a drop of water while filtering out the extra loud "buzz" of the world. Talk to your audiologist about this, they could seriously make it easier for her to "cope with" the world.

I don't have any specific advice on any of your other questions- however, you might have better luck getting answers on more populated places, like, which has many communities geared towards both blind people and parents of blind children.

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