Skip to Content

AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Adolescent Onset of Coats Disease

My daughter Ali is 14 now. She was diagnosed at 12 with late stage Coats. She has been struggling to save what is left of her sight for two long years. She is angry, frustrated, tired and lost. Is there anyone out there who can help me understand better what I need to do for her? She gets so angry at me because I shelter her but I have seen how cruel the world is to those who have lost so much and I cannot stand the idea of her experiencing more pain than she has already been through.
She has 20/600 in one eye and 20/65 in the other. Her life before diagnosis was full of sports and school, friends and freedom. Now she has had to mourn the loss of her dream of being a Marine, give up the sports she so dearly loved and learn to be independant all over again. We struggle so much just to maintain so sense of normalcy. Any advice or insight is welcome. Are there any other parents of children with Coats, am I alone?

There are currently 2 replies

Sort Replies Oldest to Newest

Re:Adolescent Onset of Coats Disease

Hi my name is Sarah, and I'm blind, and I'm 17. My mom shelters me too. I understand why she is angry and frustrated. I have Retinopathy of Prematurity, and depression. If she still wants to have fun, and if you would let her do it, she should try bungee jumping. My vision is 20/400 in one eye and nothing in the other eye. I ride roller coasters too, I do that all the time.

Benefit of Yoga and Prayanam in Eye Disorders

Dear friend,I am from India and I am blind by right eye due to cataract then before retina detactment and left eye having spactacle for near and distant.I consulted with so many doctor but no one give perfect treatment or said my problem is critical and there is no perfect medicine for this but once I heard about Yoga and Prayanam and started the both then after six month my spactacle removed and my blind eye becoming healthy but slowly.So you can easily find Yoga and Prayanam Classes in your location if you life.
S Bargate

Log in to Post a Reply