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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Don't know where to go from here

Hey everyone :) my name is Emily and I have a 4 year old son who was diagnosed with SOD and hormone defficeny when he was 9 months old. For a very long time, we thought those were his only issues but as he got older, we realized he has a severe learning disability as well...we have not been able to get him past birth to one year yet...

Anyway, we recently had an IEP meeting with the school for the blind here in Oklahoma for the third time. He has been evaluated there twice before as it was our goal for him to go there. They have always been helpful with things he needs to do to be accepted there and I've dedicated myself to those lists (probably unwise to do) they are telling me that because of how severe his learning disability is, that it is unlikely he will be accepted until he catches up.

For the first time in over 3 years, I have to think about sending my son to public school....and I'm at a complete loss as to what to I keep working on the goals the school for the blind gave me or get completely away from them? My son is not potty trained yet (have no idea how to even begin that), he is still nonverbal and cannot yet spoon feed himself...I guess I just need some encouragement about where to go now...also, any moms have positive public school stories?

Thanks ?

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Re: Don't know where to go from here

I should add that "ups and downs" are a common occurance with our son, and regardless of the, I'm currently really happy with his placement.

Re: Don't know where to go from here

Hi! My name is Emily, too...and I have a 9 year old who has optic nerve hypoplasia, hormone deficiences, and is autistic. He goes to public school, and we have our ups and downs. Ultimately, he has an educational team that cares about him...and we all work to set expectations high, even if he isn't at the same level as his peers. Do you have a teacher of the visually impaired in your area? Have you been in touch with your local schools yet?

Re: Don't know where to go from here

Emily, many children attend public school and you may find they can provide the services you need. On the AFB web site for families you will find many things to read and message boards where you can find other families with similar concerns. In particular the Education section has many things to read about programs, IEP's that can help you. We have content written by age and you may benefit from reading some for the younger years as they will still pertain to where he is now. Best thing to do is to look at where he is at across the various areas of development, what the next step is and then how to adapt to meet his needs as a child who is visually impaired.

You are not alone. Please visit the site and explore.

Re: Don't know where to go from here

Hi Emily,
I am a sophomore in high school in honors classes and I also take classes at the local university. I am completely blind and have been for a while. I don't have much experience with the learning disabilities myself, but I know many people who do. I have attended public school from Kindergarten on and it has been the best experience for me. I would consider some of the public schools in your area. You might be able to get more support from your special education from there. I know that you might not like this idea, but it might be a good idea. If you have any more questions about public schools you can email me at
I hope this helps!

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