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AFBAmerican Foundation®
for the Blind

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Help!! Any parents of visually handicapped! I need support!!

My son is 4 months old. He had a cataract, has had surgery, I'm using a contact, doing patching, he now has glaucoma in that eye, and he seems miserable should I leave it alone or keep trying???

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Re:Help!! Any parents of visually handicapped! I need support!!



igetallthehelpicangetformykidsage28and12


Re:Help!! Any parents of visually handicapped! I need support!!



iamamotherwithtwokidthatisvisuallyimpaired/icryeveryday


Re:Help!! Any parents of visually handicapped! I need support!!



Hi This is dorothy again. Has he had a cornea transplant ? also for my son's glaucoma the dr's have inserted an ahmed valve to help control the extra pressure along with glaucoma drops. you might want to look into it.
Write to me if you want to talk.


Re:Help!! Any parents of visually handicapped! I need support!!



I have a 5 yr. old son who has glaucoma, has had cornea transplants, numerous eye drops and aninirida as well as a retina detachment in one eye which he is blind in.
I don't have any experience with patching, but have heard that it doesn't always help. As far as the contact lens, I would be very careful. Children with eye problems are much more subseptible to contracting an eye infection when wearing a contact, especially when using an eye drop for glaucoma or a steriod for cornea transplants. They can develop a cornea ulcer which may have to be replaced. So i would be very careful with the contact lens. I would go with glasses .


Re:Help!! Any parents of visually handicapped! I need support!!



Keep trying!! Never give up! It works most of the time (the patch method) I am a product of it, but I'm legally blind now. Do NOT let that deter you. I would recommend doing everything you possibly can for your child.



Annie


Re:Help!! Any parents of visually handicapped! I need support!!



I am the proud mother of a visually impaired ten year old. I have no experience with patching or contacts. So I can't say much about that. I can say hang in there honey. You are your baby's best friend. Follow your doctor's advice. Take time to enjoy your baby. Margo


Re:Help!! Any parents of visually handicapped! I need support!!



I'm not a parent, but an Early Intervention teacher. Your efforts are valuable, but must continue...won't take a few days, weeks or months....it will take years. So, try to find a way to have fun, and reduce the stress for yourself and your baby. Go to VisionRe.Net and see pictures of other Mother's with babies doing patching (one has contacts) and learning to wear glasses. Keep trying, because the benefits will unfold and someday you'll feel more comfortable and so will your son. Have courage - don't give up. Applause for you! It's not easy, but you can do it!


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