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AFBAmerican Foundation®
for the Blind

Expanding possibilities for people with vision loss

Looking for a penpal mom "support" nystagmus

I have a 6 yr old son who has CVI and Nystagmus. I am trying to find some parents that I can talk to and share ideas. I am working hard to get him the services he needs in 1st grade since he didn't get any in Kindergarten. I feel alone in this and it is frustrating. :-/

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Re: Looking for a penpal mom "support" nystagmus

Oh, I wonder if you've found FamilyConnect yet? The CVI forum might be what you're looking for. It has a lot of moms (and dads) talking about their children with CVI.

There's a forum about school, too, and a feature called Family Friends where you can sign up and connect with other parents more privately.

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