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Usher's Syndrome I Child - Parent Seeking Info

My son is deaf (CI, 6 1/2, oral)and the eye doctor has indicated that he very likely has Usher's Syndrome. I knew there was something more going on!! We did have genetic testing years ago but I guess they did not test for this syndrome (I'm looking into that further) I'm looking for a parent who would communicate with me who has a child with type I. My Questions: where do I go for info, what to expect, what have you experienced, etc.
Let's talk by e-mail or phone.

Thanks a million!!!

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Re:Usher's Syndrome I Child - Parent Seeking Info



The positive aspects of vitamin d for robustness of the bone fragments are well-known. That is why each parent pushes its boy or girl to drink up milk frequently due to the vitamin d and calcium mineral in it. However, aside from these the vitamin d is quite useful for your wellness and this plays a significant role inside the protection against some significant disorders.


Re:Usher's Syndrome I Child - Parent Seeking Info



It's excellent to be aware about the d vitamin absorption and attempt to obtain the suggested every day dose. It can be excellent to understand that the vitamin can be attained right from food and out of vitamin dietary supplements. There is also one more way which is most likely the top. Getting subjected to sunshine for as much as fifteen minutes per day may be the greatest method to acquire vitamin d and this will be the explanation why it truly is referred to as the “the sunshine vitamin". http://www.vitaminddeficiencyonline.com/


Re:Usher's Syndrome I Child - Parent Seeking Info



The age range is also important as we attempt to analyze our daily needs for vitamin d. The probabilities to create vitamin d overdose are marginal as we acquire vitamin d from the sunlight and right from foodstuffs only, but in the case that takes place the amounts of calcium mineral within our system will probably dramatically raise. This disorder can certainly trigger numerous critical issues using the bone fragments, heart muscle or kidneys.
read more: http://www.vitaminddeficiencyonline.com/


Re:Usher's Syndrome I Child - Parent Seeking Info



The age range is also important as we attempt to analyze our daily needs for vitamin d. The probabilities to create vitamin d overdose are marginal as we acquire vitamin d from the sunlight and right from foodstuffs only, but in the case that takes place the amounts of calcium mineral within our system will probably dramatically raise. This disorder can certainly trigger numerous critical issues using the bone fragments, heart muscle or kidneys.
Useful resource: http://www.vitaminddeficiencyonline.com/


Re:Usher's Syndrome II



Hi, I have Usher's II and have been trying to find a chat room to correspond with others. I thought I found a great site, but I have not been able to post any questions or get answers. Can you guide me in the right direction?


Re:Usher's Syndrome I Child - Parent Seeking Info



Meeka, I am the mother of three children (one is deceased) that have Usher's II which is different from what your son was diagnosed with. My children have had the hearing loss since birth, wearing hearing aids from age 5. The were diagnosed in early 20's, my son was 19 , with Usher's II. All six of the family went to theEye Foundation clinic in Birmingham Al. and were tested. My son has been restricted to daytime only driving and also has been diagnosed as legally blind. The oldest daughter has't progressed as fast as the son. This may not be much help, since it is a different type that your son has. We have been told there is no cure and research is being done on this. The two adult children take large doses of vitamin A to help slow the progression down . This was advised by the eye doctors. You can e mail me at cvmlcm@aol.com. use subject line to " Clark's mom


Re:Usher's Syndrome I Child - Parent Seeking Info



The Foundation for Fighting Blindness (FFB) has information particularly research news on their web site. Go to:


http://www.blindness.org/Usher/">www.blindness.org/Usher/ for more information.


Re:Usher's Syndrome I Child - Parent Seeking Info



The Foundation for Fighting Blindness (FFB) has research news on their web site. Go to:
http://www.blindness.org/Usher/">www.blindness.org/Usher/ for more information.


Re:Usher's Syndrome I Child - Parent Seeking Info



I am not a parent, but I sure can guide you in some direction. I have Usher Syndrome but have contacts within research on the genetics of this. Please email me at darran@emcity.net.

Darran


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